Italy: Fondazione Paola Gonzato-Rete Sarcoma ETS

Contact Information Fondazione Paola Gonzato-Rete Sarcoma ETS Email: apaola.onlus@yahoo.it Web: www.retesarcoma.it Contact Person Ornella Gonzato, President Email: ornellagonzato@yahoo.it Paolo Casali, Chairman Email: paolo.casali@istitutotumori.mi.it Organisation Profile Trust Paola Gonzato-Rete Sarcoma Onlus is the new denomination of Associazione Paola per i tumori muscolo-scheletrici, which was founded in 2008 by Ornella Gonzato in Udine, in memory of her…

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Italy: Associazione ONLUS: Il pensatore Matteo Amitrano

Contact Information Associazione ONLUS: Il pensatore: Matteo Amitrano Email: info@ilpensatoreonlus.itWeb: http://www.ilpensatoreonlus.it/    Organisation Profile  The mission of the group is to stimulate research and support of young patients (children and adolenscents) with osteosarcomas.

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Italy: Associazione Aurora Tomaselli

Contact Information Associazione Aurora Tomaselli/Association Aurora Tomaselli Research and Prevention Via Valle Borbera 82 00141 Roma Italy Tel. +39 (0)68177637Email: info@auroratomaselli.orgWeb: http://www.auroratomaselli.org    Organisation Profile  The group is focussing on research and prevention of osteosarcomas.

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Italy: ASSOCIAZIONE “ALDO ARIENTI AMICI C.O.O – ONLUS”

Contact Information ASSOCIAZIONE “ALDO ARIENTI AMICI C.O.O – ONLUS”c/o U.O. COO – Chirurgia Oncologica OrtopedicaP.za Cardinal Ferrari 120122 MilanoItaly Tel. +39 (0)258296667Email: arienti-pini@gpini.itWeb: http://www.gpini.it/servizi/associazioni/ARIENTI/index.html    Organisation Profile  The Association supports adult and paediatric sarcoma patients in cooperation with the orthopedic institute Gaetano Pini in Milan.

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Hungary: Recovering Together Association/Gyógyulj Velünk Egyesület

Contact Information Recovering Together Association/Gyógyulj Velünk Egyesület (RTA/GYVE)Szent Laszlo Korhaz (Hospital), Tuzmadar Haz1097, BudapestHungary+36309227797Email: info@gyve.huWeb: www.gyve.hu Facebook: https://www.facebook.com/egyesulet.gyogyuljvelunk Youtube: https://www.youtube.com/channel/UC-N4WM4D81cn3NwuuCyK0JA   Contact Person Zoltan Kalo (Patient & Board Member/ International relations)E-Mail: zoltankalo@yahoo.com+36706627092   Organisation Profile The Recovering Together Association was created to raise awareness of cancer and to support those affected in all life situations.…

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Israel: Israeli GIST Patients Organisation

Contact Information Israeli GIST Patients Organisation Web: http://www.gist.org.il/ (Hebrew)   Contact Person Avi Zigdon, ChairmanEmail: gist.israel07@gmail.com   Organisation Profile The Israeli GIST Patients Organization is operating since Oct. 2007 in order to bring GIST patients the most updated information about new drugs, new research and supporting GIST patients and their families. We are also increasing…

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Germany: SOS Desmoid

Contact Information SOS DesmoidMail: info@sos-desmoid.deWeb: www.sos-desmoid.de   Contact Person Christina BaumgartenEmail: cbaumgarten@sos-desmoid.de   Organisation Profile sos-desmoid was founded as a charitable organization on 21st November 2009 in Mannheim, Germany. It was initiated by Prof. Peter Hohenberger (an oncologist and researcher of desmoid tumors) of the university of Mannheim and Miss Anja Herrmann (a psychologist) from…

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Germany: Deutsche Sarkom-Stiftung/German Sarcoma Foundation

  Contact Information Deutsche Sarkom-Stiftung/German Sarcoma Foundation Caspar-Bender-Weg 31D-61200 Wölfersheim / GermanyHotline.: ++49 (0)700-4884-0700 (GIST, Sarcomas)Direct phone: +49 6036 9836 142Mail: info@sarkome.deWeb: www.sarkome.deFacebook & Twitter: @Sarkomstiftung SPAEN Contact Person Markus WartenbergEmail: markus.wartenberg@sarkome.de Kai PilgermannEmail: kai.pilgermann@sarkome.de Organisation Profile The Foundation was launched with the aim of advancing our understanding of oncology, specifically relating to sarcomas, gastrointestinal…

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France: SOS Desmoide France

Contact Information SOS Desmoide France 45, rue René La Combe, 49 100 Angers, FranceWeb: www.sos-desmoide.asso.frEmail : association.sos-desmoide@laposte.net   Contact Person Karine le Bobinnec (President)   Organisation Profile  Its aim: like most PAGs, it is to develop the awareness of this disease, stimulate research, inform & support patients. It started in 1998.  The core of our organisation…

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