Posts by cowic

Contact Information Gasztrointestinális Stróma Tumor Web: www.gist.hu    

Contact Information SOS DesmoidMail: info@sos-desmoid.deWeb: www.sos-desmoid.de   Contact Person Christina BaumgartenEmail: cbaumgarten@sos-desmoid.de   Organisation Profile sos-desmoid was founded as a charitable organization on 21st November 2009 in Mannheim, Germany. It was initiated by Prof. Peter Hohenberger (an oncologist and researcher of desmoid tumors) of the university of Mannheim and Miss Anja Herrmann (a psychologist) from…

  Contact Information Deutsche Sarkom-Stiftung/German Sarcoma Foundation Caspar-Bender-Weg 31D-61200 Wölfersheim / GermanyHotline.: ++49 (0)700-4884-0700 (GIST, Sarcomas)Direct phone: +49 6036 9836 142Mail: info@sarkome.deWeb: www.sarkome.deFacebook & Twitter: @Sarkomstiftung SPAEN Contact Person Markus WartenbergEmail: markus.wartenberg@sarkome.de Kai PilgermannEmail: kai.pilgermann@sarkome.de Organisation Profile The Foundation was launched with the aim of advancing our understanding of oncology, specifically relating to sarcomas, gastrointestinal…

Contact Information SOS Desmoide France 45, rue René La Combe, 49 100 Angers, FranceWeb: www.sos-desmoide.asso.frEmail : association.sos-desmoide@laposte.net   Contact Person Karine le Bobinnec (President)   Organisation Profile  Its aim: like most PAGs, it is to develop the awareness of this disease, stimulate research, inform & support patients. It started in 1998.  The core of our organisation…

Contact Information Association Française des Patients du GIST « Ensemble contre le GIST »Email: info@ensemblecontrelegist.comWeb: http://www.ensemblecontrelegist.com   Contact Person Estelle Lecointe (President)   Organisation Profile A.F.P.G. « Ensemble contre le GIST » was created in October 2005, several months after Estelle’s own GIST diagnosis. The main objectives of this organization consist in providing patients, caregivers…

Contact Information GIST and STS Alliance for Patients – BulgariaWeb: http://www.gist-bg.com/Email: info@gist-bg.com Contact Person Yuliana Popova (President)Email:  youlianapopova@yahoo.com Organisation Profile GIST and STS Alliance for patients-Bulgaria started its activities in January 2012 as a non-profit organization supporting people, their families and caregivers, affected by these rare cancers in Bulgaria. We provide them with reliable information…

Contact Information The Sarah Grace Sarcoma Foundation Email: gm@kicksarcoma.org.au Website: www.kicksarcoma.org.au   Contact Person Dr Grace Moshi (Founder and Director)Email: findcureforsarcoma@gmail.com   Organisation Profile The Sarah-Grace Sarcoma Foundation advocates for increased research to find new and better therapies for treating sarcoma patients. The Foundation aims to spread excellence in the field of sarcoma and improve…

Contact Information Hannah’s Chance Sarcoma Foundation C/- The Wesley Research Institute Level 8 East Wing, The Wesley Hospital 451 Coronation Drive Auchenflower Qld 4066 Postal Address PO Box 499 Toowong Qld 4066 Tel: (07) 3721 1777  Fax: (07) 3721 1590 Email: hannahschance@wesleyresearch.com.auWeb: http://www.hannahschancefoundation.org.au/   Organisation Profile

Contact Information Erik Hausoul Sarcoma Foundation Post Office Box 154Richmond NSW  2753Australia Tel.: When calling from Australia please use: (02) 45612012 Tel.: When calling from outside Australia please use: +61 2 4561 2012Email: info@erikhausoulsarcomafoundation.comWeb: http://erikhausoulsarcomafoundation.webs.com/   Organisation Profile The Vision of the Erik Hausoul Sarcoma Foundation is to reduce the number of deaths resulting from…

Contact Information Henzo KenyaP.O. BOX 1008 – 00517 NAIROBI, KENYATel: +254 733-963 242Website: www.henzokenya.or.keEmail: info@henzokenya.or.ke SPAEN Contact Ferdinand Mwangura (Chairman)Email: chairman@henzokenya.or.ke Group Profile Henzo Kenya was an idea realised by three patients and two volunteers out of a need for emotional support in June 2007. In 2009 it was registered as a support group –…