Posts by cowic

         Contact Information Patient Group Name: GIST Cancer UK & PAWS-GISTPennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Patient & Carer Helpline: +44 300 400 0000Website:  www.gistcancer.org.uk & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneb@gistcancer.org.uk Organisation Profile GIST Cancer UK are a network of patients and carers affected by GIST, sharing experience and…

Contact Information Web: http://www.chordoma-uk.org c/o UCL Cancer Institute Research Trust72 Huntley Street, London, WC1E 6BT Tel ++44 (0)20 7679 6325 Chordoma UK is administered as part of the UCL Cancer Institute Research Trust, a registered charity (RCN 1135220)   Contact Person Gerald Fitz-Gibbon (Founder), Susan Fitz-Gibbon (Founder and diagnosed with Chordoma 2007), Richard Sutton-Mattocks (Chairman…

Contact Information Bone Cancer Research Trust 10 Feast Field Horsforth Leeds LS18 4TJ UK Tel. +44 (0) 113 258 5934 Email:  info@bcrt.org.uk Web: https://www.bcrt.org.uk/ Facebook: BoneCancerResearchTrust Twitter: @BCRT Instagram: @bonecancerresearch   Organisation Profile Our Vision: A world where primary bone cancer is cured. Our Mission: To save lives and improve outcomes for people affected by…

Email: nederland@chordomafoundation.orgWeb: http://www.chordoma.org  Organisation Profile The Chordoma Foundation is a nonprofit organization dedicated to curing chordoma. Started in the USA in 2007, the Chordoma Foundation is still the only existing organization that unites and represents chordoma patients. Given the rarity of this disease, and the resultant need to leverage all available resources and partners –…

Contact Information Soft Tissue Sarcoma People’s OrganizationWeb: http://www.stsp.org/    Organisation Profile Soft Tissue Sarcoma People’s Organization is a web-site with information, resources and personal experiences realting to soft tissue sarcoma and contains two main areas: The first area of this web-site includes information about A.M.M. Eggermont MD’s Cancer Scientific activities. It’s a tribute to his…

Contact Information Noi per Voi per il Meyer Onlus – Associazione di Genitori, contro le leucemie e i tumori infantili Tel: +39 (0)55-580030Tel/Fax +39 (0)55-414433Email: info@noipervoi.orgWeb: http://www.noipervoi.org Organisation Profile  Noi per Voi is an association of parents against leukemia and childhood cancers, which has been established in 1997 as non-profit organization. The main goals are:…

Contact Information Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva Email: elisaruo@yahoo.itWeb: www.desmoide.it     Contact Person Elisa Baldoin (Patient)Email: elisaruo@yahoo.it

Contact Information   Le Ali Onlus Web: http://www.lealionlus.org/Email: info@lealionlus.org                   COO – Centro di Oncologia Ortopedica – Brescia: Web: www.coobs.itEmail: ippolito@coobs.it    Contact Person Le Ali Onlus President: Francesca Piccolo:  frapiccol@libero.it COO-BS (Centro di Oncologia Ortopedica – Brescia): Dr. V. Ippolito: ippolito@coobs.itTel.: (+39) 030.3995393   Organisation Profile…

Contact Information Fondazione Paola Gonzato-Rete Sarcoma ETS Email: apaola.onlus@yahoo.it Web: www.retesarcoma.it Contact Person Ornella Gonzato, President Email: ornellagonzato@yahoo.it Paolo Casali, Chairman Email: paolo.casali@istitutotumori.mi.it Organisation Profile Trust Paola Gonzato-Rete Sarcoma Onlus is the new denomination of Associazione Paola per i tumori muscolo-scheletrici, which was founded in 2008 by Ornella Gonzato in Udine, in memory of her…

Contact Information Associazione ONLUS: Il pensatore: Matteo Amitrano Email: info@ilpensatoreonlus.itWeb: http://www.ilpensatoreonlus.it/    Organisation Profile  The mission of the group is to stimulate research and support of young patients (children and adolenscents) with osteosarcomas.