India: Friends of Max

Contact Information Friends of MaxSecom Business Centre, A Block Basement,Shiv Sagar Estate, Dr A B Road,Worli, Mumbai 400018, IndiaTel.: +91 22 66603320, +91 22 66603321 Website: www.friendsofmax.infoEmail: friendsofmax@gmail.com SPAEN Contact: Dr Nikhil Guhagarkar (SPAEN Board Member)Email: gdental99@gmail.com Group Profile Friends of Max (www.friendsofmax.info) is the Support Group arm of The Max Foundation in India and…

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India: SPANDAN (VCare)

Contact Information VCare FoundationA102, Om Residency,J W Rd, Near Tata Memorial HospitalOpp Bhoiwada Court,Parel (East)Mumbai 400012 India   Contact/Helpline numbers: 9821949401, 9821949402, 022-24141856 Email: admin@vcarecancer.org Website: www.vcarecancer.org Facebook: www.facebook.com/vcarefoundationindia   SPAEN Contact Mrs. Vandana GuptaEmail: admin@vcarecancer.org Group Profile V Care Foundation is a voluntary support group dedicated to providing free help, hope, awareness and education…

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Latin America: Alianza GIST

Contact Information Alianza GIST Web: www.alianzagist.org    Organisation Profile Alianza GIST is a partnership of patient advocates representing the Latin American countries and aims to improve the knowledge of patients and physicians, as well as increase treatment access, support local patient organizations, and encourage collaboration and coordination amongst physicians.

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USA: Amschwand Sarcoma Cancer Foundation

Contact Information Amschwand Sarcoma Cancer Foundation 2260 West Holcombe Boulevard, Suite 174Houston, TX 77030USA Email: info@sarcomacancer.orgWeb: http://www.sarcomacancer.org/index.php?page=about-ascf Organisation Profile The loss of his mother, Kathryn, to sarcoma, in addition to his own eighteen-month battle with the disease, led Tom Amschwand to establish the Amschwand Sarcoma Cancer Foundation (ASCF). Tom founded ASCF with the purpose of educating…

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USA: Beat Sarcoma

Contact Information   Beat Sarcoma76 Ellsworth Street San Francisco, CA 94110, USATel.: +1 (415) 826 0474Email: info@beatsarcoma.orgWeb:  www.beatsarcoma.org Organisation Profile Beat Sarcoma is a volunteer initiative, launched in 2007 by a sarcoma patient, to help increase awareness about sarcomas, raise funds for research and assist with survivorship issues. We raise funds to sponsor specific research projects…

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USA: Chordoma Foundation

Contact Information Chordoma Foundation  PO Box 2127 Durham, NC 27702-2127USAEmail: info@chordoma.orgWeb: http://www.chordoma.org/   Contact Person Josh Sommer (Excecutive Director)Email: josh@chordoma.org Hans Keulen (European liaison)Email: hans@chordoma.org Organisation Profile About ChordomaChordoma is a relentless and difficult to treat bone cancer that occurs in the head and spine in people of all ages. No drugs are approved to treat…

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USA: GSI – GIST Support International

Contact Information GIST Support International (GSI)12 Bomaca DriveDoylestown, PA 18901 Tel.: +1 215- 340-9374Email:  gsi@gistsupport.orgWeb: http://www.gistsupport.org/   Contact Person Barbara Doré (Board Member)Email: barbara@gistsupport.org Julie Royster (Science Co-ordinator)Email: julie@gistsupport.org Organisation Profile GIST Support International (GSI) is an all-volunteer group of patients with gastrointestinal stromal tumor (GIST), family members, and interested professionals.  Our e-mail listserv includes over 1400…

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USA: Life Raft Group

Contact Information The Life Raft Group155 Route 46 West, Suite 202 Wayne, NJ 07470 USA Tel.: 973-837-9092Fax: 973-837-9095Email: liferaft@liferaftgroup.orgWeb: www.liferaftgroup.org   Contact Person Norman Scherzer (Executive Director)Email: nscherzer@liferaftgroup.org   Organisation Profile The Life Raft Group (LRG) is a non-profit organization providing support, through information, education, and innovative research to patients with a rare cancer called…

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USA: Sarcoma Alliance

Contact Information Sarcoma Alliance775 East Blithedale, #334Mill Valley, CA 94941Tel.: (415) 381-7236 Fax: (415) 381-7235Email: info@sarcomaalliance.orgWeb: www.sarcomalliance.org   Organisation ProfileThe Sarcoma Alliance strives to improve the lives of people affected by sarcoma through accurate diagnosis, improved access to care, guidance, education and support. Suzanne Leider founded the Sarcoma Alliance in 1999 in the living room…

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USA: Sarcoma Foundation of America

Contact Information Sarcoma Foundation of America 9884 Main Street Damascus, Maryland 20872 Tel: ( +1) 301-253-8687 Fax: ( +1) 301-253-8690Email:  info@curesarcoma.org  Web: http://www.curesarcoma.org/ Organisation Profile The mission of the Sarcoma Foundation of America (SFA) is to advocate for increased research to find new and better therapies with which to treat patients with Sarcoma. The organization…

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