Blog & News
USA: The Desmoid Tumour Research Foundation (DTRF)
Contact Information The Desmoid Tumour Research FoundationP.O. Box 273Suffern, New York 10901Email: info@dtrf.orgWeb: http://www.dtrf.org Contact Person Anna Grenne, PhD, DTRF Research Director Email: anna@dtrf.org Organisation Profile The Desmoid Tumor Research Foundation (DTRF) was founded in September, 2005. Mission The Desmoid…
USA: Sarcoma Foundation of America
Contact Information Sarcoma Foundation of America 9884 Main Street Damascus, Maryland 20872 Tel: ( +1) 301-253-8687 Fax: ( +1) 301-253-8690Email: info@curesarcoma.org Web: http://www.curesarcoma.org/ Organisation Profile The mission of the Sarcoma Foundation of America (SFA) is to advocate for increased research to find…
USA: Sarcoma Alliance
Contact Information Sarcoma Alliance775 East Blithedale, #334Mill Valley, CA 94941Tel.: (415) 381-7236 Fax: (415) 381-7235Email: info@sarcomaalliance.orgWeb: www.sarcomalliance.org Organisation ProfileThe Sarcoma Alliance strives to improve the lives of people affected by sarcoma through accurate diagnosis, improved access to care, guidance, education and…
USA: Life Raft Group
Contact Information The Life Raft Group155 Route 46 West, Suite 202 Wayne, NJ 07470 USA Tel.: 973-837-9092Fax: 973-837-9095Email: liferaft@liferaftgroup.orgWeb: www.liferaftgroup.org Contact Person Norman Scherzer (Executive Director)Email: nscherzer@liferaftgroup.org Organisation Profile The Life Raft Group (LRG) is a non-profit organization providing support,…
USA: GSI – GIST Support International
Contact Information GIST Support International (GSI)12 Bomaca DriveDoylestown, PA 18901 Tel.: +1 215- 340-9374Email: gsi@gistsupport.orgWeb: http://www.gistsupport.org/ Contact Person Barbara Doré (Board Member)Email: barbara@gistsupport.org Julie Royster (Science Co-ordinator)Email: julie@gistsupport.org Organisation Profile GIST Support International (GSI) is an all-volunteer group of patients with…
USA: Chordoma Foundation
Contact Information Chordoma Foundation PO Box 2127 Durham, NC 27702-2127USAEmail: info@chordoma.orgWeb: http://www.chordoma.org/ Contact Person Josh Sommer (Excecutive Director)Email: josh@chordoma.org Hans Keulen (European liaison)Email: hans@chordoma.org Organisation Profile About ChordomaChordoma is a relentless and difficult to treat bone cancer that occurs in the head…
USA: Beat Sarcoma
Contact Information Beat Sarcoma76 Ellsworth Street San Francisco, CA 94110, USATel.: +1 (415) 826 0474Email: info@beatsarcoma.orgWeb: www.beatsarcoma.org Organisation Profile Beat Sarcoma is a volunteer initiative, launched in 2007 by a sarcoma patient, to help increase awareness about sarcomas, raise funds for research…
USA: Amschwand Sarcoma Cancer Foundation
Contact Information Amschwand Sarcoma Cancer Foundation 2260 West Holcombe Boulevard, Suite 174Houston, TX 77030USA Email: info@sarcomacancer.orgWeb: http://www.sarcomacancer.org/index.php?page=about-ascf Organisation Profile The loss of his mother, Kathryn, to sarcoma, in addition to his own eighteen-month battle with the disease, led Tom Amschwand to establish the…
Latin America: Alianza GIST
Contact Information Alianza GIST Web: www.alianzagist.org Organisation Profile Alianza GIST is a partnership of patient advocates representing the Latin American countries and aims to improve the knowledge of patients and physicians, as well as increase treatment access, support local patient organizations,…
India: SPANDAN (VCare)
Contact Information VCare FoundationA102, Om Residency,J W Rd, Near Tata Memorial HospitalOpp Bhoiwada Court,Parel (East)Mumbai 400012 India Contact/Helpline numbers: 9821949401, 9821949402, 022-24141856 Email: admin@vcarecancer.org Website: www.vcarecancer.org Facebook: www.facebook.com/vcarefoundationindia SPAEN Contact Mrs. Vandana GuptaEmail: admin@vcarecancer.org Group Profile V Care Foundation is…