Blog & News
USA: Chordoma Foundation
Contact Information Chordoma Foundation PO Box 2127 Durham, NC 27702-2127USAPhone: +1 919-809-6779Email: info@chordoma.orgWeb: http://www.chordoma.org/ Contact Person Shannon LozinskyDirector Patient Services E-Mail: shannon@chordoma.org Organisation Profile Chordoma is a rare cancer that grows in the bones of the skull and spine. It can affect…
Italy: Orchestra per la Vita Onlus
Contact Information Orchestra per la Vita Onlus Email: info@orchestraperlavita.orgWeb: www.orchestraperlavita.org Contact Person Leda Berto (President) Mail: info@orchestraperlavita.org Andrea Bolzicco Mail: andrea.bolzicco@orchestraperlavita.org Organisation Profile Orchestra per la Vita Onlus has supported the Epithelioid Sarcoma research at the National Cancer Research center (IRCCS…
Switzerland: Swiss GIST Group (2)
Contact Information Das Lebenshaus e.V.Swiss GIST Group/GIST Gruppe Schweiz Sterenweg 7, CH-6300 ZugTel. +41 (0)41 710 80 58Fax +41 (0)41 710 80 78Mail: gist@gist.chWeb: http://www.gist.ch/ Contact Person Martin Wettstein (President)Email: martin.wettstein@gist.ch Helga Meier Schnorf Email: gist@gist.ch Organisation Profile On January 14,…
UK: Desmoid Fibromatosis UK Patients & Caregivers
Contact Information https://www.facebook.com/groups/716472531722406/ [Closed group]Facebook: https://www.facebook.com/groups/142693282944740/ Contact Person Lisa PascoeEmail: lisa.desmoiduniteduk@gmail.com Organisation Profile Desmoid Fibromatosis Patients & Carers U.K ( DFPCUK ) is here to empower, support and educate patients through and beyond their diagnosis of a desmoid tumour. We currently have…
USA: Desmoid Tumour Research Foundation
Contact Information USA: Desmoid Tumour Research Foundation Contact Person Organisation Profile Soon to come…
Kenya: Henzo Kenya
Contact Information Henzo KenyaP.O. BOX 1008 – 00517 NAIROBI, KENYATel: +254 733-963 242Website: www.henzokenya.or.keEmail: info@henzokenya.or.ke SPAEN Contact Ferdinand Mwangura (Chairman)Email: chairman@henzokenya.or.ke Group Profile Henzo Kenya was an idea realised by three patients and two volunteers out of a need for emotional support…
Australia: Erik Hausoul Sarcoma Foundation
Contact Information Erik Hausoul Sarcoma Foundation Post Office Box 154Richmond NSW 2753Australia Tel.: When calling from Australia please use: (02) 45612012 Tel.: When calling from outside Australia please use: +61 2 4561 2012Email: info@erikhausoulsarcomafoundation.comWeb: http://erikhausoulsarcomafoundation.webs.com/ Organisation Profile The Vision of the…
Australia: Hannah’s Chance Sarcoma Foundation
Contact Information Hannah’s Chance Sarcoma Foundation C/- The Wesley Research Institute Level 8 East Wing, The Wesley Hospital 451 Coronation Drive Auchenflower Qld 4066 Postal Address PO Box 499 Toowong Qld 4066 Tel: (07) 3721 1777 Fax: (07) 3721 1590 Email: hannahschance@wesleyresearch.com.auWeb:…
Australia: Sarah-Grace Sarcoma Foundation
Contact Information The Sarah Grace Sarcoma Foundation Email: gm@kicksarcoma.org.au Website: www.kicksarcoma.org.au Contact Person Dr Grace Moshi (Founder and Director)Email: findcureforsarcoma@gmail.com Organisation Profile The Sarah-Grace Sarcoma Foundation advocates for increased research to find new and better therapies for treating sarcoma patients.…
Bulgaria: GIST Alliance for Patients Bulgaria
Contact Information GIST and STS Alliance for Patients – BulgariaWeb: http://www.gist-bg.com/Email: info@gist-bg.com Contact Person Yuliana Popova (President)Email: youlianapopova@yahoo.com Organisation Profile GIST and STS Alliance for patients-Bulgaria started its activities in January 2012 as a non-profit organization supporting people, their families and caregivers,…