Blog & News
STRASS Trial
Surgery With or Without Radiation Therapy in Treating Patients With Previously Untreated Nonmetastatic Retroperitoneal Soft Tissue Sarcoma (STRASS) Agents: Radiation therapy followed by surgery vs. surgery alone Phase III Status Open, recruiting Sponsor European Organisation for Research and Treatment of Cancer –…
SPAEN Advocacy in Action Award 2021
SPAEN Advocacy in Action Award 2021 announced for best projects in sarcoma patients advocacy Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. We believe it is time to…
SPAEN Advocacy in Action Award 2018: The winners are… (2)
Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. The projects that were entered for the “Sarcoma Advocacy in Action Award 2018” once again showed this impressively! All…
SPAEN Advocacy in Action Award 2019: The winners are…
Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. The 12 projects that were entered for the “Sarcoma Advocacy in Action Award 2019” once again showed this impressively!…
Patient led PROMs must take centre stage in cancer research
by Roger Wilson, co-founder and honorary president of SPAEN and founder of Sarcoma UKResearch Involvement and Engagement, February 2018 Patient involvement in research is about adding value rather than commenting on technical quality. After 15 yearsas an involved patient in cancer…
Call to action: SPAEN Advocacy in Action Award 2019
SPAEN Advocacy in Action Award for best projects in sarcoma patients advocacy Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. We believe it is time to shout out…
SPAEN Advocacy in Action Award 2017: And the award goes to…
Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. We decided that it is time to shout out about how important patient advocacy in sarcomas is –…
2018 SPAEN Annual Conference: 3-4 February 2018, Milan/Italy
SPAEN Annual Conference combined with ESMO GIST/Sarcoma expert meeting in 2018 SPAEN is very excited that for the first time, the SPAEN Annual Conference 2018 will be held combined with a professional meeting. SPAEN and European Society of Medical Oncology (ESMO) have…
7th SPAEN Annual Conference, September 8-10, 2016 in Warsaw, Poland
Learning, teaching, sharing and a great sense of community Once again, the community of patient advocates for sarcomas, GIST and desmoids have come together for another successful SPAEN Annual Conference from September 8-10, 2016. This year, Poland was the host country, welcoming…
Annual Conferences
Previous SPAEN Conferences 8th SPAEN Annual Conference 2018 Milan/ItalyThe SPAEN Annual Conference 2018 was held – for the first time ever – in conjunction with a professional meeting. SPAEN and European Society of Medical Oncology (ESMO) have agreed to combine their meetings…