Blog & News
Study Results
The following table lists the results of some of the many clinical trials available worldwide for sarcoma, GIST or desmoid patients. For more information about some of the ongoing trials, click here. No Trial Name Agents Phase Status Results Sponsor 1 Study…
Early Involvement
Clinical studies are an essential step in the development of novel treatment methods for cancer and other diseases. They show researchers what works for the welfare of patients and what does not. In addition to safety and effectiveness they also determine whether…
Submitted Abstracts
Setting the international research agenda for sarcoma together with patients and carers: first results of the Sarcoma Patient EuroNet (SPAEN) priority setting partnershipPublished in ESMO Open, June 2022 Research in sarcomas has historically been the domain of scientists and clinicians attempting to…
Position Papers
The SPAEN Clinical Sarcoma Research Paper on “The challenge of sarcomas: the patient advocacy group perspective” has been written by Roger Wilson, SPAEN honorary president and a sarcoma patient advocate for more than 20 years. The patient advocacy agenda covers every aspect…
Cancer Profiles
Soon to come
Understanding Bone Sarcomas
The most common bone sarcomas are osteosarcoma, Ewing’s sarcoma, chondrosarcoma, giant cell tumours and chordomas, with osteosarcomas and chondrosarcomas being the most frequent, accounting for over half of all the malignant bone tumour diagnoses. Osteosarcoma is the most frequent primary cancer of…
Strass Trial
10 FACTS – STRASS Trial WHO is the trial for? • Patients with histologically confirmed retroperitoneal sarcoma (RPS)• No metastasis • Previously untreated • Tumor must be operable, suitable for radiotherapy and radiologically measurable (RECIST 1.1)• Overall health status of the patient…
Patients & Studies
10 Questions About Trials to Ask Your Doctor Taking part in a clinical trial can be a good choice but it is often hard to find a clinical trial that is right for you. To find clinical trials: Talk to your doctor who…
Training Courses
WECAN Academy 2019 The WECAN Academy 2019 combined two leading capacity building programmes in patient advocacy: WECAN Smart Start: Starting and Building a National Non-Profit Patient Group focused on “beginners” in patient advocacy, and the WECAN Masterclass on Patient Advocacy on experienced…
Conference/Project Reports
Please find below reports from the most important congresses and projects: ESSO 39The annual meeting of the European Society of Surgical Oncology was held this year in Rotterdam from 8 until 10 October. Although ESSO covers the entire field of cancers,…