đź‘ĄPatient Advocacy @ CTOS
Each year, SPAGN (Sarcoma Patient Advocacy Global Network) actively participates in the CTOS Annual Meeting to ensure that the patient voice is meaningfully represented in global sarcoma research and care.
We’re delighted to share that patient advocacy will once again have a valued presence at the Connective Tissue Oncology Society (CTOS) Annual Meeting. This year, we are pleased to host the Patient Advocacy Lounge at CTOS 2025 in Boca Raton, Florida:Â
đź“Ť Patient Advocacy Lounge: Estate Ballroom II and III in the Mizner Convention Center.
🗓️ Thursday, November 13 – Saturday, November 15, 2025
🕣 Open daily from 8:30 am – 5:00 pm
The Lounge will serve as a welcoming hub where patient representatives can meet, exchange, and engage with all conference participants. We look forward to seeing you there!
Through dedicated activities — from our Patient Advocacy Lounge to the Poster Wall, information tables, and collaborative sessions — we aim to spotlight the work, insights, and lived experiences of sarcoma patient advocates from around the world.
The Patient Advocacy Poster Wall
Once again in 2025, we will feature the Patient Advocacy Poster Wall – a space dedicated to showcasing the inspiring work of patient advocates worldwide.
Do you have a great project you would like to share with others? Or would you like to introduce your impressive sarcoma patient advocacy organization to an interested audience?Â
Whether you want to present a lighthouse project, highlight your organization, or share an ongoing initiative, this is your chance to show what advocacy can achieve.
This year, we’re once again highlighting advocacy projects through our Patient Advocacy Poster Wall at CTOS 2025, taking place November 12–15, 2025, in Miami, Florida (see more information about CTOS 2025 here).
Patient groups attending CTOS are welcome to display brochures or informational materials on tables provided in the Lounge. This opportunity is open to all patient organizations at CTOS, regardless of SPAGN membership.