SPAEN/SPAGN Annual Conferences

Since 2010, SPAEN/SPAGN has been dedicated to organizing annual conferences that unite sarcoma, GIST, and desmoid patient groups with experts, researchers, and industry leaders. These in-person events have consistently brought together 80-100 participants from over 25 countries, including patient advocates, leading sarcoma experts, and pharmaceutical representatives. Each three-day conference focuses on learning about latest developments, enhancing advocacy, and building capacity.

In 2025, we held our first-ever conference outside Europe — in Washington, D.C. This was a significant milestone in our journey and a strong reaffirmation of our commitment to the global sarcoma community.

We are now delighted to announce that registration for the 2026 Annual Conference is officially open! The conference will return to Europe, taking place in Stockholm, Sweden, hosted at the prestigious Karolinska University Hospital. We look forward to another inspiring gathering, continuing to support our international community and fostering collaboration on an even broader scale.