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Welcome to Sarcoma Patient Global Advocacy Network!
Sarcoma Patient Global Advocacy Network (SPAGN), the international Network of Sarcoma, GIST and Desmoid Patient Advocacy Groups, was founded in April 2009 with the aim of extending information services, patient support and advocacy to patient organisations for the benefit of sarcoma patients across the whole of Europe and internationally. Acting in partnership with clinical experts, scientific researchers, industry and other stakeholders SPAGN is working to improve the treatment and care of sarcoma patients through improving information and support, and by increasing the visibility of sarcoma with policymakers and the public. |
Patient Advocacy @CTOS 2024
ACF’s European Manifesto: Addressing Critical Gaps in Research and Treatment of Rare Cancers🎗️
Key Findings from Phase II of the SPAGN Priority Setting Partnership published 📝
Save the Date: SPAGN Annual Conference 2025 in Washington D.C.!📅
Sarcoma Awareness Month 2024 is approaching quickly: Join our campaign!
What is a sarcoma specialist center?
Bridging the Gap in Sarcoma Care: A Vision for South Africa
Detecting sarcomas early is crucial
Abbie’s Determination to Sock it to Sarcoma!
Artificial intelligence – what does it mean to us?
The lump is gone — finally!
From chaos to control: Three decades in the continuum of care
Working together, making a difference.
SPAGN and Members
The network only is as strong as its members. SPAGN welcomes every sarcoma, GIST or desmoid patient group and individuals interested in sarcomas worldwide to become part of our network and thus strengthen it.
Events and Projects
SPAGN not only hosts a variety of events, but also participates in congresses and external events. It is our aim to represent the patients' voice wherever suitable, necessary and potentially helpful to achieve our goals, foremost to improve the situation of sarcoma patients around the globe. Find out more in our section "Events & Projects"
Advocacy & Tools
Our member organizations are very active in their countries and we try to support them wherever possible, and even more so in the future. Please stay tuned, there's more to come!
Experts & Research
Sarcomas are rare. It is therefore very important to find physicians or even better multidisciplinary teams who have experience with this disease. SPAGN is setting up alist of sarcoma centers or centers with sarcoma expertise per country. Find out more here.
Sarcoma Facts & Figures
Sarcomas are a diverse and relatively rare group of malignant tumors. The vast majority of diagnosed sarcomas are soft tissue sarcomas, while malignant bone tumors make up just over 10%.
Find out more about Soft Tissue Sarcomas, Bone Sarcomas, GIST and Desmoid Tumors in our section "Sarcoma Facts & Figures"
Blog, News and Newsletter
Please visit our News section or our SPAGN Blog "Voices of Sarcoma". To get regular information, please sign up for our Newsletter today!