Germany: Ultra Rare Sarcoma e.V.

Organisation Profile

Ultra Rare Sarcoma e. V. is a patient organization dedicated to improving the situation of people affected by ultra-rare sarcomas.

Our aims:

• We promote and support research – for progress and new perspectives.

• We bring together people affected, their families, care providers, and researchers – for exchange and mutual support.

• We explain complex topics in an understandable way – for greater clarity and informed decisions.

• We advocate for participation in politics, research, and care – for solutions that truly meet the needs of those affected.