Desmoid Tumor Awareness Month
Every September, the DTRF and the global patient and caregiver community share stories and information, and rally support to advance desmoid tumor research. Wherever you are, we encourage you to participate and help us raise #DesmoidAwareness!
We would like to thank Desmoid Survivor, Angela F. for founding the first Desmoid Tumor Awareness Month. In September of 2016, Angela launched a Facebook page to publicly feature patients’ video stories and raise funds for desmoid tumor research and ignited a spark that has grown into a global celebration. We are grateful to Angela, and all of the patients and caregivers who take the time and energy to participate and share their stories.