2026 International Chordoma Community Conference
Connect, learn, and make an impact
The International Chordoma Community Conference (ICCC) brings together patients, caregivers, and loved ones from around the world for a weekend focused on research, care, survivorship, and connection.
We’ll kick things off on Friday with relaxed sessions where you can meet new friends and re-connect with old ones, then join the doctors and researchers finishing up the International Chordoma Research Workshop for a reception and our Uncommon Awards dinner.
Saturday will be a day of learning and conversation. We’ll talk about how chordoma research works, share updates to international care guidelines, and explore what survivorship means as needs change over time. Throughout the day, there will be opportunities to share your experiences and perspectives, because the input of patients and caregivers is vital to shaping research, improving care, and strengthening support.
Sunday morning will focus on connection and community, with time for peer support, open conversation, and guided activities. There will be space to reflect, build relationships, give to others facing chordoma, and head home feeling grounded and inspired.
We hope you’ll join us for a weekend of helpful insights, hopeful updates, and meaningful connection!