Bulgaria: Sarcomafree Foundation

Bulgaria: Sarcomafree Foundation Back to members Organisation Profile The Sarcomafree Foundation is dedicated to raising worldwide awareness about sarcoma and providing essential funding for research and treatment on a global scale. Their primary aim is to support clinical research projects specifically tailored to address the unique needs of young adults and children battling this disease.…

Read More

My lumpy life as a young adult

ā€œAfter a shower, I noticed an odd lump on my left hip. Two weeks passed, but Lumpy—the name I declared this mysterious lump—remained. Luckily, I had a when in doubt, check it out mentalityā€¦ā€ Read about Matt’s sarcoma journey and find out why sarcoma is like skydiving.

Read More

Spain: FUNDACIƓN MARI PAZ JIMENEZ CASADO

Spain: FUNDACIƓN MARI PAZ JIMENEZ CASADO   Back to members Organisation profile The FUNDACIƓN MARI PAZ JIMƉNEZ CASADO (FMPJC) is an independent, non-profit organization with financial and functional autonomy, and whose scope of action is the Spanish territory. OUR MISSION To help people and groups in a situation of need, mainly those affected by a…

Read More

South Africa: Campaigning for Cancer

South Africa: Campaigning for Cancer Back to members Ā Organisation Profile Pioneering cancer advocacy in South Africa, Campaigning for Cancer lobbies for the promotion and protection of the rights of patients and those affected by cancer with regard to policy, healthcare costs and healthcare delivery. Campaigning for Cancer does this on an individual patient level -…

Read More

Romania: HomeCare Association

HomeCare Association Back to members Contact Information HomeCare Association Covering breast and gynaecologic cancers including sarcomas šŸ“§ grupsperantabrasov@yahoo.com Key Contacts Simona Ene (President) šŸ“§Ā si_mi_ene@yahoo.com   General Information YearĀ of establishment:Ā  SPAGN member since:Ā  No. of members:Ā   

Read More

Poland: Stow. Pomocy Chorym Na Miesaki “SARCOMA”

Poland: Stow. Pomocy Chorym Na Miesaki ā€œSARCOMAā€ Back to members Contact Information Stow. Pomocy Chorym Na Miesaki “SARCOMA” ul. Malborska 14/5 03-286 Warszawa Poland šŸ“§ biuro@sarcoma.pl ā˜Ž +48 608 335 326 www.sarcoma.pl   Contact Person Kamil Dolecki Email:Ā Kamil.Dolecki@sarcoma.pl Szymon Bubilek Email:Ā Szymon.Bubilek@sarcoma.pl Pola Gmaj Email:Ā Pola.Gmaj@sarcoma.pl Katarzyna Michniewska Email:Ā Katarzyna.Michniewska@sarcoma.pl Aleksandra Tobota Email:Ā Aleksandra.Tobota@sarcoma.pl General Information YearĀ of establishment:Ā  SPAGN…

Read More

Poland: Stow. Pomocy Chorym Na GIST

Poland: Stow. Pomocy Chorym Na GIST Back to members Organisation Profile The Polish GIST Patients Support Association is a non profit, NGO representing GIST patients and their relatives. Our main goal is to promote all necessary knowledge to increase awareness concerning GIST. Thanks to participation in many Polish and International events we have possibilities to…

Read More

Netherlands: Chordoma Foundation Europe

Netherlands: Chordoma Foundation Europe Back to members Organisation Profile The Chordoma Foundation is a nonprofit organization dedicated to curing chordoma. Started in the USA in 2007, the Chordoma Foundation is still the only existing organization that unites and represents chordoma patients. Given the rarity of this disease, and the resultant need to leverage all available…

Read More