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Poland: Stow. Pomocy Chorym Na Miesaki “SARCOMA” Back to members Contact Information Stow. Pomocy Chorym Na Miesaki “SARCOMA” ul. Malborska 14/5 03-286 Warszawa Poland 📧 biuro@sarcoma.pl ☎ +48 608 335 326 www.sarcoma.pl   Contact Person Kamil Dolecki Email: Kamil.Dolecki@sarcoma.pl Szymon Bubilek Email: Szymon.Bubilek@sarcoma.pl Pola Gmaj Email: Pola.Gmaj@sarcoma.pl Katarzyna Michniewska Email: Katarzyna.Michniewska@sarcoma.pl Aleksandra Tobota Email: Aleksandra.Tobota@sarcoma.pl General Information Year of establishment:  SPAGN…

Poland: Stow. Pomocy Chorym Na GIST Back to members Organisation Profile The Polish GIST Patients Support Association is a non profit, NGO representing GIST patients and their relatives. Our main goal is to promote all necessary knowledge to increase awareness concerning GIST. Thanks to participation in many Polish and International events we have possibilities to…

Netherlands: Chordoma Foundation Europe Back to members Organisation Profile The Chordoma Foundation is a nonprofit organization dedicated to curing chordoma. Started in the USA in 2007, the Chordoma Foundation is still the only existing organization that unites and represents chordoma patients. Given the rarity of this disease, and the resultant need to leverage all available…

Spain: Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS) Back to members Organisation profile AEAS, the Sarcoma Patients Spanish Association, is a non profit organization that advocates on behalf of people affected by sarcoma. It was set up in 2008, in Madrid, by a group of sarcoma patients and their relatives, aiming to…

South America: Alianza GIST Back to members Organisation Profile Alianza GIST is an alliance of Spanish speaking GIST patient advocacy groups and patients advocates from Argentina, Brazil, Bolivia, Chile, Colombia, Peru, Venezuela, Costa Rica, Nicaragua, Guatemala, El Salvador, Dominican Republic, Mexico and Spain. Its main objectives are: Educate and inform patients as well as the…

Norway: Sarkomer Norway  Back to members Organisation Profile Sarkomer was founded on the 1st of October 2011 and is a nationwide patient organisation and a support group for everyone affected by sarcoma. We offer support, information and activities for patients, relatives and survivors. Our mission is to contribute to more awareness and knowledge about sarcoma.…