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  Agents: Onfekafusp alfa (L19TNF) + Doxorubicin vs. Doxorubicin alone Phase III Status Recruiting Sponsor Philogen S.p.A. For further information please also consult ClinicalTrials.gov.   A Phase III Study Comparing the Efficacy of the Combination of Doxorubicin and the  L19TNF to Doxorubicin Alone as First-line Therapy in Patients With Advanced or Metastatic Soft Tissue Sarcoma.…

Netherlands: Patientenplatform Sarcomen   Back to members Organisation Profile In 2003 a Dutch patient organisation was established for GIST patients. This group flourished and grew steadily, reaching over 450 members in 2016, including Dutch speaking patients in Belgium. In 2012 a patient organisation was created for all other sarcoma patients. This group faced severe challenges…

Macedonia: GIST Patient Group Macedonia   Back to members Contact Information GIST Patient Group Macedonia Key Contacts Dejan Krstevski 📧kkrstevski74@hotmail.com General Information Year of establishment:  SPAGN member since:  No. of members:   

Kenya: Henzo Kenya Back to members Group Profile Henzo Kenya was an idea realised by three patients and two volunteers out of a need for emotional support in June 2007. In 2009 it was registered as a support group – community based organization with Ministry of Gender, Children and Social Development. Henzo membership consists of…

Italy: Orchestra per la Vita Onlus Back to members Organisation Profile Orchestra per la Vita Onlus has supported the Epithelioid Sarcoma research at the National Cancer Research center (IRCCS Istituto Nazionale dei Tumori ) in Milan during the last 5 years with a cumulative donation of more than 60.000 EUR. Here the major achievements: “Anthracycline,…

Italy: A.I.G. Associazione Italiana GIST Back to members Organisation Profile A.I.G. Associazione Italiana GIST is a non-profit organization, founded in 2006, providing information, support and assistance to patients affected by GIST and to their families.  It acts in cooperation with national and international patient organizations, medical community and pharmaceutical companie, with the support of Fondazione…

Italy: Fondazione Paola Gonzato-Rete Sarcoma ETS GIST  Back to members Organisation Profile Trust Paola Gonzato-Rete Sarcoma Onlus is the new denomination of Associazione Paola per i tumori muscolo-scheletrici, which was founded in 2008 by Ornella Gonzato in Udine, in memory of her sister Paola. This legal transformation does not change at all the final goal which…

Israel: Israeli GIST Patients Organisation  Back to members Organisation Profile The Israeli GIST Patients Organization is operating since Oct. 2007 in order to bring GIST patients the most updated information about new drugs, new research and supporting GIST patients and their families. We are also increasing the awareness of Health Authorities in Israel on the…

France: SOS Desmoide France Back to members Organisation Profile  Its aim: like most PAGs, it is to develop the awareness of this disease, stimulate research, inform & support patients. It started in 1998.  The core of our organisation lies in a team of about ten persons who meet every month. It is worth noting that the…

  Germany:  Deutsche Sarkom-Stiftung/German Sarcoma Foundation Back to members Organisation Profile The Foundation was launched with the aim of advancing our understanding of oncology, specifically relating to sarcomas, gastrointestinal stromal tumours (GIST) and desmoid tumours, as well as other rare soft tissue and bone tumours (e. g. tenosynovial giant cell tumours (TGCT)/pigmented villonodular synovitis (PVNS)…