Sweden: Sarkomföreningen

February 25, 2011

Sweden: Sarkomföreningen  Back to members Organisation Profile Sarkomföreningen, The Swedish Sarcoma Association, was founded in 2015 and offers support for sarcomapatients, relatives and survivors. Our mission is also to increase awareness about the disease. We are about 300 paying members. Sarkomföreningen is both a patient organisation and a support group. We provide information and campaign…

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Switzerland: Swiss GIST Group

February 25, 2011

Contact Information Swiss GIST Group/GIST Gruppe Schweiz/Groupe GIST Suisse Sterenweg 7, CH-6300 ZugTel. +41 (0)41 710 80 58Mail: gist@gist.chWeb: http://www.gist.ch/ Contact Person Martin Wettstein (President)Email: martin.wettstein@gist.ch Helga Meier Schnorf Email: gist@gist.ch    Organisation Profile On January 14, 2010 the GIST-Group of Switzerland was founded in accordance with the provisions of the Swiss Civil Code. The…

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Turkey: Genç Birikim Derneği & Youth Accumulation Association

February 25, 2011

Turkey: Genç Birikim Derneği & Youth Accumulation Association Back to members Organisation Profile Youth Accumulation Association was established in 2006 in Muş (Turkey) by a group of young people in order to contribute to the social and personal development of young people. The four main objectives of our association are: To enhance respect, friendship and…

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UK: “PAWS-GIST” (Paediatric Adolescent Wildtype Syndromic-GIST)

February 25, 2011

Contact Information “PAWS-GIST” (Paediatric Adolescent Wildtype Syndromic-GIST)Pennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Telephone Number incl. country code: Patient & Carer Helpline: +44 300 400 0000Website: www.gistsupportuk.com & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneandkim@aol.com   Organisation Profile GIST Support UK are a network of patients and carers affected by GIST,…

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UK: Bone Cancer Research Trust

February 25, 2011

Contact Information Bone Cancer Research Trust 10 Feast Field Horsforth Leeds LS18 4TJ UK Tel. +44 (0) 113 258 5934 Email:  info@bcrt.org.uk Web: https://www.bcrt.org.uk/ Facebook: BoneCancerResearchTrust Twitter: @BCRT Instagram: @bonecancerresearch   Organisation Profile Our Vision: A world where primary bone cancer is cured. Our Mission: To save lives and improve outcomes for people affected by…

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UK: Chordoma UK

February 25, 2011

Contact Information Web: http://www.chordoma-uk.org c/o UCL Cancer Institute Research Trust72 Huntley Street, London, WC1E 6BT Tel ++44 (0)20 7679 6325 Chordoma UK is administered as part of the UCL Cancer Institute Research Trust, a registered charity (RCN 1135220)   Contact Person Gerald Fitz-Gibbon (Founder), Susan Fitz-Gibbon (Founder and diagnosed with Chordoma 2007), Richard Sutton-Mattocks (Chairman…

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UK: GIST Cancer UK and PAWS GIST

February 25, 2011

         Contact Information Patient Group Name: GIST Cancer UK & PAWS-GISTPennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Patient & Carer Helpline: +44 300 400 0000Website:  www.gistcancer.org.uk & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneb@gistcancer.org.uk Organisation Profile GIST Cancer UK are a network of patients and carers affected by GIST, sharing experience and…

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UK: Guy Francis Bone Cancer Research Fund

February 25, 2011

   Guy Francis Bone Cancer Research Fund Acomb House 23, Front Street Acomb York YO24 3BW Tel. +44 (0)1904 799151Fax +44 (0)1904 783765 Email: info@gfbonecancer.org.ukWeb: www.gfbonecancer.org.uk   Contact Person Mike Francis, ChairmanEmail: mike.francis@gfbonecancer.org.uk   Organisation Profile Founded in 2002 by teenage bone cancer patient Guy Francis shortly before his death, the Guy Francis Bone Cancer…

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