Posts by cowic

Contact Information Gasztrointestinális Stróma Tumor Web: www.gist.hu    

Contact Information SOS DesmoidMail: info@sos-desmoid.deWeb: www.sos-desmoid.de   Contact Person Christina BaumgartenEmail: cbaumgarten@sos-desmoid.de   Organisation Profile sos-desmoid was founded as a charitable organization on 21st November 2009 in Mannheim, Germany. It was initiated by Prof. Peter Hohenberger (an oncologist and researcher of desmoid tumors) of the university of Mannheim and Miss Anja Herrmann (a psychologist) from…

Contact Information GIST Support International (GSI)12 Bomaca DriveDoylestown, PA 18901 Tel.: +1 215- 340-9374Email:  gsi@gistsupport.orgWeb: http://www.gistsupport.org/   Contact Person Barbara Doré (Board Member)Email: barbara@gistsupport.org Julie Royster (Science Co-ordinator)Email: julie@gistsupport.org Organisation Profile GIST Support International (GSI) is an all-volunteer group of patients with gastrointestinal stromal tumor (GIST), family members, and interested professionals.  Our e-mail listserv includes over 1400…

Contact Information The Life Raft Group155 Route 46 West, Suite 202 Wayne, NJ 07470 USA Tel.: 973-837-9092Fax: 973-837-9095Email: liferaft@liferaftgroup.orgWeb: www.liferaftgroup.org   Contact Person Norman Scherzer (Executive Director)Email: nscherzer@liferaftgroup.org   Organisation Profile The Life Raft Group (LRG) is a non-profit organization providing support, through information, education, and innovative research to patients with a rare cancer called…

Contact Information Sarcoma Alliance775 East Blithedale, #334Mill Valley, CA 94941Tel.: (415) 381-7236 Fax: (415) 381-7235Email: info@sarcomaalliance.orgWeb: www.sarcomalliance.org   Organisation ProfileThe Sarcoma Alliance strives to improve the lives of people affected by sarcoma through accurate diagnosis, improved access to care, guidance, education and support. Suzanne Leider founded the Sarcoma Alliance in 1999 in the living room…

Contact Information Sarcoma Foundation of America 9884 Main Street Damascus, Maryland 20872 Tel: ( +1) 301-253-8687 Fax: ( +1) 301-253-8690Email:  info@curesarcoma.org  Web: http://www.curesarcoma.org/ Organisation Profile The mission of the Sarcoma Foundation of America (SFA) is to advocate for increased research to find new and better therapies with which to treat patients with Sarcoma. The organization…

Contact Information The Desmoid Tumour Research FoundationP.O. Box 273Suffern, New York 10901Email: info@dtrf.orgWeb:  http://www.dtrf.org   Contact Person Anna Grenne, PhD, DTRF Research Director Email: anna@dtrf.org   Organisation Profile The Desmoid Tumor Research Foundation (DTRF) was founded in September, 2005.  Mission The Desmoid Tumor Research Foundation (DTRF) seeks to advance the science related to desmoid tumors…

Contact Information Association Française des Patients du GIST « Ensemble contre le GIST »Email: info@ensemblecontrelegist.comWeb: http://www.ensemblecontrelegist.com   Contact Person Estelle Lecointe (President)   Organisation Profile A.F.P.G. « Ensemble contre le GIST » was created in October 2005, several months after Estelle’s own GIST diagnosis. The main objectives of this organization consist in providing patients, caregivers…

Contact Information SOS Desmoide France 45, rue René La Combe, 49 100 Angers, FranceWeb: www.sos-desmoide.asso.frEmail : association.sos-desmoide@laposte.net   Contact Person Karine le Bobinnec (President)   Organisation Profile  Its aim: like most PAGs, it is to develop the awareness of this disease, stimulate research, inform & support patients. It started in 1998.  The core of our organisation…

  Contact Information Deutsche Sarkom-Stiftung/German Sarcoma Foundation Caspar-Bender-Weg 31D-61200 Wölfersheim / GermanyHotline.: ++49 (0)700-4884-0700 (GIST, Sarcomas)Direct phone: +49 6036 9836 142Mail: info@sarkome.deWeb: www.sarkome.deFacebook & Twitter: @Sarkomstiftung SPAEN Contact Person Markus WartenbergEmail: markus.wartenberg@sarkome.de Kai PilgermannEmail: kai.pilgermann@sarkome.de Organisation Profile The Foundation was launched with the aim of advancing our understanding of oncology, specifically relating to sarcomas, gastrointestinal…