Posts by cowic

Contact Information RUKIJE un raggio di sole – Associazione pazienti oncologici dell’aparato muscolo-scheletricoVia Fontanelle di Sant’Apollaria, 16 cap 00039 Zagarolo (Roma)Italy Email: info@rukije.orgWeb: www.rukije.org Contact Person Monica Morelli (President) Email: monicamorelli@rukije.org  Organisation Profile  The activities of the association are addressed to people who suffer from   cancer in the musculoskeletal system.

Contact Information Soft Tissue Sarcoma People’s OrganizationWeb: http://www.stsp.org/    Organisation Profile Soft Tissue Sarcoma People’s Organization is a web-site with information, resources and personal experiences realting to soft tissue sarcoma and contains two main areas: The first area of this web-site includes information about A.M.M. Eggermont MD’s Cancer Scientific activities. It’s a tribute to his…

Email: nederland@chordomafoundation.orgWeb: http://www.chordoma.org  Organisation Profile The Chordoma Foundation is a nonprofit organization dedicated to curing chordoma. Started in the USA in 2007, the Chordoma Foundation is still the only existing organization that unites and represents chordoma patients. Given the rarity of this disease, and the resultant need to leverage all available resources and partners –…

Contact Information   Contactgroep GIST Nederland – BelgiëPostbus 8152 3503 RD UtrechtTel.: (030) 291 60 90Email: info@contactgroepgist.nlWeb: http://www.contactgroepgist.nl/   Organisation Profile Established in 2003, Contactgroep GIST is the organization for Dutch and Flemish speaking GIST patients (and their families), with members in The Netherlands, Flemish Belgium, and i.e. in Germany, Italy, Norway, Portugal and the…

Email: info@patientenplatformsarcomen.nlWeb: http://www.patientenplatformsarcomen.nl Organisation Profile In 2003 a Dutch patient organisation was established for GIST patients. This group flourished and grew steadily, reaching over 450 members in 2016, including Dutch speaking patients in Belgium. In 2012 a patient organisation was created for all other sarcoma patients. This group faced severe challenges because of the diversity…

Contact Information Sarkomer Norway Mail: info@sarkomer.no Website: http://sarkomer.no/ Contact Person Cathrine Moen-Nilsen Email: cathrine@sarkomer.no Organisation Profile Sarkomer was founded on the 1st of October 2011 and is a nationwide patient organisation and a support group for everyone affected by sarcoma. We offer support, information and activities for patients, relatives and survivors. Our mission is to…

Contact Information Stow. Pomocy Chorym Na GIST 01 652 Warszawa, ul. Potocka 14 Tel. (22) 832 21 03 Email: stowarzyszenie@gist.plWeb: www.gist.pl   Contact Person Piotr Fonrobert   Organisation Profile The Polish GIST Patients Support Association is a non profit, NGO representing GIST patients and their relatives. Our main goal is to promote all necessary knowledge…

Contact Information Stow. Pomocy Chorym Na Miesaki “SARCOMA” ul. Malborska 14/5  03-286 Warszawa Poland Tel. +48 608 335 326 Email: biuro@sarcoma.pl Web: www.sarcoma.pl   Contact Person Kamil Dolecki Email: Kamil.Dolecki@sarcoma.pl Szymon Bubilek Email: Szymon.Bubilek@sarcoma.pl Pola Gmaj Email: Pola.Gmaj@sarcoma.pl Katarzyna Michniewska Email: Katarzyna.Michniewska@sarcoma.pl Aleksandra Tobota Email: Aleksandra.Tobota@sarcoma.pl  

Contact Information HomeCare Association covering breast and gynaecologic cancers including sarcomas Email: grupsperantabrasov@yahoo.com     Contact Person Simona Ene (President) Email: si_mi_ene@yahoo.com  

Contact Information Romanian Rare Cancers Association – RCArare Organisation ProfileFounded in June 2011; Member of The Romanian National Alliance for Rare Diseases; Joined the European Partnership for Action Against Cancer – ECPC (to identify and promote appropriate solutions and to share best practices on rare cancers). Aim To represent people affected by rare cancers, their…