Posts by cowic

Contact Information The Desmoid Tumour Research FoundationP.O. Box 273Suffern, New York 10901Email: info@dtrf.orgWeb:  http://www.dtrf.org   Contact Person Anna Grenne, PhD, DTRF Research Director Email: anna@dtrf.org   Organisation Profile The Desmoid Tumor Research Foundation (DTRF) was founded in September, 2005.  Mission The Desmoid Tumor Research Foundation (DTRF) seeks to advance the science related to desmoid tumors…

Contact Information The Karen Wyckoff Rein in Sarcoma Foundation (KWRISF)3312 Richmond Avenue Shoreview, Minnesota, 55126-3842Email: info@reininsarcoma.orgWeb: http://www.reininsarcoma.org Organisation ProfileThe Karen Wyckoff Rein in Sarcoma Foundation (KWRISF) is a resource for families touched by sarcomas, an uncommon and often lethal group of bone and soft tissue cancers that may strike children and younger adults, leaving an…

Contact Information The Liddy Shriver Sarcoma Initiative17 Bethea Drive Ossining, New York 10562-1620 Phone: +1 (914) 762-3251 Fax: +1 (914) 941-9181Email: info@sarcomahelp.orgWeb:  http://sarcomahelp.org   Contact Person Beverly Shriver (Co-founder), Email: beverly@sarcomahelp.org Bruce Shriver (Co-founder), Email: bruce@sarcomahelp.org   Organisation Profile The mission of the Liddy Shriver Sarcoma Initiative is to improve the quality of life for…

Contact Information Global GIST Network Email: liferaft@liferaftgroup.orgWeb: http://www.globalgist.org   Contact Person The Global GIST Network is coordinated by Gilles Frydman, President of ACOR (Association of Online Cancer Resources), Markus Wartenburg, Spokesperson for Das Lebenshaus (House of Life) and Norman Scherzer, Executive Director of the Life Raft Group.  Organisation Profile The Global GIST Network is a…

Contact Information Belgium Contact Groep GIST  Contact Person Kris HeymanEmail: voorzitter@contactgroepgist.be  

Contact Information Association Française des Patients du GIST « Ensemble contre le GIST »Email: info@ensemblecontrelegist.comWeb: http://www.ensemblecontrelegist.com   Contact Person Estelle Lecointe (President)   Organisation Profile A.F.P.G. « Ensemble contre le GIST » was created in October 2005, several months after Estelle’s own GIST diagnosis. The main objectives of this organization consist in providing patients, caregivers…

Contact Information SOS Desmoide France 45, rue René La Combe, 49 100 Angers, FranceWeb: www.sos-desmoide.asso.frEmail : association.sos-desmoide@laposte.net   Contact Person Karine le Bobinnec (President)   Organisation Profile  Its aim: like most PAGs, it is to develop the awareness of this disease, stimulate research, inform & support patients. It started in 1998.  The core of our organisation…

  Contact Information Deutsche Sarkom-Stiftung/German Sarcoma Foundation Caspar-Bender-Weg 31D-61200 Wölfersheim / GermanyHotline.: ++49 (0)700-4884-0700 (GIST, Sarcomas)Direct phone: +49 6036 9836 142Mail: info@sarkome.deWeb: www.sarkome.deFacebook & Twitter: @Sarkomstiftung SPAEN Contact Person Markus WartenbergEmail: markus.wartenberg@sarkome.de Kai PilgermannEmail: kai.pilgermann@sarkome.de Organisation Profile The Foundation was launched with the aim of advancing our understanding of oncology, specifically relating to sarcomas, gastrointestinal…

Contact Information SOS DesmoidMail: info@sos-desmoid.deWeb: www.sos-desmoid.de   Contact Person Christina BaumgartenEmail: cbaumgarten@sos-desmoid.de   Organisation Profile sos-desmoid was founded as a charitable organization on 21st November 2009 in Mannheim, Germany. It was initiated by Prof. Peter Hohenberger (an oncologist and researcher of desmoid tumors) of the university of Mannheim and Miss Anja Herrmann (a psychologist) from…

Contact Information Gasztrointestinális Stróma Tumor Web: www.gist.hu