Posts by cowic

Contact Information Sarkomer Norway Mail: info@sarkomer.no Website: http://sarkomer.no/ Contact Person Cathrine Moen-Nilsen Email: cathrine@sarkomer.no Organisation Profile Sarkomer was founded on the 1st of October 2011 and is a nationwide patient organisation and a support group for everyone affected by sarcoma. We offer support, information and activities for patients, relatives and survivors. Our mission is to…

Email: info@patientenplatformsarcomen.nlWeb: http://www.patientenplatformsarcomen.nl Organisation Profile In 2003 a Dutch patient organisation was established for GIST patients. This group flourished and grew steadily, reaching over 450 members in 2016, including Dutch speaking patients in Belgium. In 2012 a patient organisation was created for all other sarcoma patients. This group faced severe challenges because of the diversity…

Contact Information   Contactgroep GIST Nederland – BelgiëPostbus 8152 3503 RD UtrechtTel.: (030) 291 60 90Email: info@contactgroepgist.nlWeb: http://www.contactgroepgist.nl/   Organisation Profile Established in 2003, Contactgroep GIST is the organization for Dutch and Flemish speaking GIST patients (and their families), with members in The Netherlands, Flemish Belgium, and i.e. in Germany, Italy, Norway, Portugal and the…

Email: nederland@chordomafoundation.orgWeb: http://www.chordoma.org  Organisation Profile The Chordoma Foundation is a nonprofit organization dedicated to curing chordoma. Started in the USA in 2007, the Chordoma Foundation is still the only existing organization that unites and represents chordoma patients. Given the rarity of this disease, and the resultant need to leverage all available resources and partners –…

Contact Information Soft Tissue Sarcoma People’s OrganizationWeb: http://www.stsp.org/    Organisation Profile Soft Tissue Sarcoma People’s Organization is a web-site with information, resources and personal experiences realting to soft tissue sarcoma and contains two main areas: The first area of this web-site includes information about A.M.M. Eggermont MD’s Cancer Scientific activities. It’s a tribute to his…

Contact Information RUKIJE un raggio di sole – Associazione pazienti oncologici dell’aparato muscolo-scheletricoVia Fontanelle di Sant’Apollaria, 16 cap 00039 Zagarolo (Roma)Italy Email: info@rukije.orgWeb: www.rukije.org Contact Person Monica Morelli (President) Email: monicamorelli@rukije.org  Organisation Profile  The activities of the association are addressed to people who suffer from   cancer in the musculoskeletal system.

Contact Information Luogo di incontro per scambiarsi informazioni sul tumori Desmoide o Fibromatosi agressiva Email: elisaruo@yahoo.itWeb: www.desmoide.it     Contact Person Elisa Baldoin (Patient)Email: elisaruo@yahoo.it

Contact Information LAM Italia ONLUS/Italian Association of LymphangioleiomyomatosisUfficio Postale33050 Pavia di UdineItaly Tel. +39 335 5380863Email: info@lam-italia.orgWeb: http://www.lam-italia.org   Contact Person Iris Bassi (President)Email: info@lam-italia.org   Organisation Profile  LAM Italy aims to support an effective treatment and cure of lymphangioleiomyomatosis (LAM). Main objectives are: Raise funds to support scientific research;   Promote the training of…

Contact Information Fondazione Paola Gonzato-Rete Sarcoma ETS Email: apaola.onlus@yahoo.it Web: www.retesarcoma.it Contact Person Ornella Gonzato, President Email: ornellagonzato@yahoo.it Paolo Casali, Chairman Email: paolo.casali@istitutotumori.mi.it Organisation Profile Trust Paola Gonzato-Rete Sarcoma Onlus is the new denomination of Associazione Paola per i tumori muscolo-scheletrici, which was founded in 2008 by Ornella Gonzato in Udine, in memory of her…

Contact Information Associazione ONLUS: Il pensatore: Matteo Amitrano Email: info@ilpensatoreonlus.itWeb: http://www.ilpensatoreonlus.it/    Organisation Profile  The mission of the group is to stimulate research and support of young patients (children and adolenscents) with osteosarcomas.