Israel: Israeli GIST Patients Organisation

Contact Information Israeli GIST Patients Organisation Web: http://www.gist.org.il/ (Hebrew)   Contact Person Avi Zigdon, ChairmanEmail: gist.israel07@gmail.com   Organisation Profile The Israeli GIST Patients Organization is operating since Oct. 2007 in order to bring GIST patients the most updated information about new drugs, new research and supporting GIST patients and their families. We are also increasing…

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Italy: A.I.G. Associazione Italiana GIST

Contact Information A.I.G. ASSOCIAZIONE ITALIANA GIST OnlusPostal address: Casella Postale 55 Pavia Centro, 27100 PaviaLegal address: c/o Fondazione IRCCS Istituto Nazionale dei Tumori, Via G. Venezian 1, 20133 MilanoWeb: http://www.gistonline.itEmail: info@gistonline.it   Contact Person Barbara Tamagni (Director)Email : barbaratamagni@yahoo.it Organisation Profile A.I.G. Associazione Italiana GIST is a non-profit organization, founded in 2006, providing information, support…

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Italy: ASSOCIAZIONE “ALDO ARIENTI AMICI C.O.O – ONLUS”

Contact Information ASSOCIAZIONE “ALDO ARIENTI AMICI C.O.O – ONLUS”c/o U.O. COO – Chirurgia Oncologica OrtopedicaP.za Cardinal Ferrari 120122 MilanoItaly Tel. +39 (0)258296667Email: arienti-pini@gpini.itWeb: http://www.gpini.it/servizi/associazioni/ARIENTI/index.html    Organisation Profile  The Association supports adult and paediatric sarcoma patients in cooperation with the orthopedic institute Gaetano Pini in Milan.

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Italy: Associazione Aurora Tomaselli

Contact Information Associazione Aurora Tomaselli/Association Aurora Tomaselli Research and Prevention Via Valle Borbera 82 00141 Roma Italy Tel. +39 (0)68177637Email: info@auroratomaselli.orgWeb: http://www.auroratomaselli.org    Organisation Profile  The group is focussing on research and prevention of osteosarcomas.

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Italy: Fondazione Paola Gonzato-Rete Sarcoma ETS

Contact Information Fondazione Paola Gonzato-Rete Sarcoma ETS Email: apaola.onlus@yahoo.it Web: www.retesarcoma.it Contact Person Ornella Gonzato, President Email: ornellagonzato@yahoo.it Paolo Casali, Chairman Email: paolo.casali@istitutotumori.mi.it Organisation Profile Trust Paola Gonzato-Rete Sarcoma Onlus is the new denomination of Associazione Paola per i tumori muscolo-scheletrici, which was founded in 2008 by Ornella Gonzato in Udine, in memory of her…

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Italy: Le Ali Onlus and COO-BS (Centro di Oncologia Ortopedica – Brescia)

Contact Information   Le Ali Onlus Web: http://www.lealionlus.org/Email: info@lealionlus.org                   COO – Centro di Oncologia Ortopedica – Brescia: Web: www.coobs.itEmail: ippolito@coobs.it    Contact Person Le Ali Onlus President: Francesca Piccolo:  frapiccol@libero.it COO-BS (Centro di Oncologia Ortopedica – Brescia): Dr. V. Ippolito: ippolito@coobs.itTel.: (+39) 030.3995393   Organisation Profile…

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UK: Bone Cancer Research Trust

Contact Information Bone Cancer Research Trust 10 Feast Field Horsforth Leeds LS18 4TJ UK Tel. +44 (0) 113 258 5934 Email:  info@bcrt.org.uk Web: https://www.bcrt.org.uk/ Facebook: BoneCancerResearchTrust Twitter: @BCRT Instagram: @bonecancerresearch   Organisation Profile Our Vision: A world where primary bone cancer is cured. Our Mission: To save lives and improve outcomes for people affected by…

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UK: Chordoma UK

Contact Information Web: http://www.chordoma-uk.org c/o UCL Cancer Institute Research Trust72 Huntley Street, London, WC1E 6BT Tel ++44 (0)20 7679 6325 Chordoma UK is administered as part of the UCL Cancer Institute Research Trust, a registered charity (RCN 1135220)   Contact Person Gerald Fitz-Gibbon (Founder), Susan Fitz-Gibbon (Founder and diagnosed with Chordoma 2007), Richard Sutton-Mattocks (Chairman…

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UK: GIST Cancer UK and PAWS GIST

         Contact Information Patient Group Name: GIST Cancer UK & PAWS-GISTPennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Patient & Carer Helpline: +44 300 400 0000Website:  www.gistcancer.org.uk & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneb@gistcancer.org.uk Organisation Profile GIST Cancer UK are a network of patients and carers affected by GIST, sharing experience and…

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