Posts by cowic

Contact Information https://www.facebook.com/groups/716472531722406/ [Closed group]Facebook: https://www.facebook.com/groups/142693282944740/ Contact Person Lisa PascoeEmail: lisa.desmoiduniteduk@gmail.com Organisation Profile Desmoid Fibromatosis Patients & Carers U.K ( DFPCUK ) is here to empower, support and educate patients through and beyond their diagnosis of a desmoid tumour. We currently have our facebook page to share information and up to date news on what’s…

Contact Information USA: Desmoid Tumour Research Foundation   Contact Person     Organisation Profile Soon to come…

Contact Information Henzo KenyaP.O. BOX 1008 – 00517 NAIROBI, KENYATel: +254 733-963 242Website: www.henzokenya.or.keEmail: info@henzokenya.or.ke SPAEN Contact Ferdinand Mwangura (Chairman)Email: chairman@henzokenya.or.ke Group Profile Henzo Kenya was an idea realised by three patients and two volunteers out of a need for emotional support in June 2007. In 2009 it was registered as a support group –…

Contact Information Erik Hausoul Sarcoma Foundation Post Office Box 154Richmond NSW  2753Australia Tel.: When calling from Australia please use: (02) 45612012 Tel.: When calling from outside Australia please use: +61 2 4561 2012Email: info@erikhausoulsarcomafoundation.comWeb: http://erikhausoulsarcomafoundation.webs.com/   Organisation Profile The Vision of the Erik Hausoul Sarcoma Foundation is to reduce the number of deaths resulting from…

Contact Information Hannah’s Chance Sarcoma Foundation C/- The Wesley Research Institute Level 8 East Wing, The Wesley Hospital 451 Coronation Drive Auchenflower Qld 4066 Postal Address PO Box 499 Toowong Qld 4066 Tel: (07) 3721 1777  Fax: (07) 3721 1590 Email: hannahschance@wesleyresearch.com.auWeb: http://www.hannahschancefoundation.org.au/   Organisation Profile

Contact Information The Sarah Grace Sarcoma Foundation Email: gm@kicksarcoma.org.au Website: www.kicksarcoma.org.au   Contact Person Dr Grace Moshi (Founder and Director)Email: findcureforsarcoma@gmail.com   Organisation Profile The Sarah-Grace Sarcoma Foundation advocates for increased research to find new and better therapies for treating sarcoma patients. The Foundation aims to spread excellence in the field of sarcoma and improve…

Contact Information GIST and STS Alliance for Patients – BulgariaWeb: http://www.gist-bg.com/Email: info@gist-bg.com Contact Person Yuliana Popova (President)Email:  youlianapopova@yahoo.com Organisation Profile GIST and STS Alliance for patients-Bulgaria started its activities in January 2012 as a non-profit organization supporting people, their families and caregivers, affected by these rare cancers in Bulgaria. We provide them with reliable information…

Contact Information  Ewing’s Cancer Foundation of CanadaMail: 72 Rockport Crescent, Richmond Hill, Ontario, L4C 2L8 Telephone: 905.737.0127 Email: contact@ewingscancer.ca Organisation Profile The Ewing’s Cancer Foundation of Canada is a public charitable foundation backed by a dedicated team of professionals, volunteer advisors, and supported by a Board of Directors, Honorary Board and Scientific Advisory Board. Purpose…

Contact Information  GIST Sarcoma Life Raft Group, Canada 66 Maple Street Guelph, Ontario N1G 2G2 Email: info@liferaftgroup.ca Organisation Profile GIST Sarcoma Life Raft Group Canada, was incorporated as a not-for-profit Canadian corporation in 2008. We are allied with the the Life Raft Group, USA. We are a patient support organization for people with GIST and…

Contact Information  Sarcoma Cancer Foundation of Canada374 Lippincott StreetToronto, ONM5S 2P7 Email: info@sarcomacancer.caWeb: www.sarcomacancer.ca Organisation Profile  The Sarcoma Cancer Foundation of Canada (SCFC) is Canada’s national organization dedicated to providing patient support and education while working with Canada’s leading research institutions to eradicate the disease.The SCFC was founded in 2010 in memory of Vera Arajs…