Posts by cowic

Contact Information Israeli GIST Patients Organisation Web: http://www.gist.org.il/ (Hebrew)   Contact Person Avi Zigdon, ChairmanEmail: gist.israel07@gmail.com   Organisation Profile The Israeli GIST Patients Organization is operating since Oct. 2007 in order to bring GIST patients the most updated information about new drugs, new research and supporting GIST patients and their families. We are also increasing…

Contact Information Gasztrointestinális Stróma Tumor Web: www.gist.hu    

Contact Information SOS DesmoidMail: info@sos-desmoid.deWeb: www.sos-desmoid.de   Contact Person Christina BaumgartenEmail: cbaumgarten@sos-desmoid.de   Organisation Profile sos-desmoid was founded as a charitable organization on 21st November 2009 in Mannheim, Germany. It was initiated by Prof. Peter Hohenberger (an oncologist and researcher of desmoid tumors) of the university of Mannheim and Miss Anja Herrmann (a psychologist) from…

Contact Information Henzo KenyaP.O. BOX 1008 – 00517 NAIROBI, KENYATel: +254 733-963 242Website: www.henzokenya.or.keEmail: info@henzokenya.or.ke SPAEN Contact Ferdinand Mwangura (Chairman)Email: chairman@henzokenya.or.ke Group Profile Henzo Kenya was an idea realised by three patients and two volunteers out of a need for emotional support in June 2007. In 2009 it was registered as a support group –…

Contact Information Bone Cancer Research Trust 10 Feast Field Horsforth Leeds LS18 4TJ UK Tel. +44 (0) 113 258 5934 Email:  info@bcrt.org.uk Web: https://www.bcrt.org.uk/ Facebook: BoneCancerResearchTrust Twitter: @BCRT Instagram: @bonecancerresearch   Organisation Profile Our Vision: A world where primary bone cancer is cured. Our Mission: To save lives and improve outcomes for people affected by…

Contact Information https://sarcomacoalition.us/ Contact Person Annie Achee, Member of the Sarcoma Coalition Steering CommitteeEmail: annieachee@aol.com Organisation Profile The Sarcoma Coalition is comprised of Patient Advocacy organizations and foundations that represent a cross-section of sarcoma subtypes or a pan-sarcoma group. There is no individual membership.The membership of the Coalition has a designated representative to participate in the…

Contact Information Web: http://www.chordoma-uk.org c/o UCL Cancer Institute Research Trust72 Huntley Street, London, WC1E 6BT Tel ++44 (0)20 7679 6325 Chordoma UK is administered as part of the UCL Cancer Institute Research Trust, a registered charity (RCN 1135220)   Contact Person Gerald Fitz-Gibbon (Founder), Susan Fitz-Gibbon (Founder and diagnosed with Chordoma 2007), Richard Sutton-Mattocks (Chairman…

         Contact Information Patient Group Name: GIST Cancer UK & PAWS-GISTPennysfield Barn, Dauntsey, Chippenham, Wiltshire, SN15 4HL, UK Patient & Carer Helpline: +44 300 400 0000Website:  www.gistcancer.org.uk & www.pawsgistclinic.org SPAEN Contact: Jayne Bressington – Vice Chair – jayneb@gistcancer.org.uk Organisation Profile GIST Cancer UK are a network of patients and carers affected by GIST, sharing experience and…

Contact Information A.I.G. ASSOCIAZIONE ITALIANA GIST OnlusPostal address: Casella Postale 55 Pavia Centro, 27100 PaviaLegal address: c/o Fondazione IRCCS Istituto Nazionale dei Tumori, Via G. Venezian 1, 20133 MilanoWeb: http://www.gistonline.itEmail: info@gistonline.it   Contact Person Barbara Tamagni (Director)Email : barbaratamagni@yahoo.it Organisation Profile A.I.G. Associazione Italiana GIST is a non-profit organization, founded in 2006, providing information, support…

Contact Information Association Française des Patients du GIST « Ensemble contre le GIST »Email: info@ensemblecontrelegist.comWeb: http://www.ensemblecontrelegist.com   Contact Person Estelle Lecointe (President)   Organisation Profile A.F.P.G. « Ensemble contre le GIST » was created in October 2005, several months after Estelle’s own GIST diagnosis. The main objectives of this organization consist in providing patients, caregivers…