Posts by cowic

  USA: Sarcoma Foundation of America Back to members Organisation Profile   Mission The mission of the Sarcoma Foundation of America (SFA) is to advocate for sarcoma patients by funding research and by increasing awareness about the disease. The organization raises money to privately fund grants for sarcoma researchers and conducts education and advocacy efforts…

Contact Information https://www.mibagents.org/ Contact Person Ann Graham: President & Founderemail: ann@mibagents.org Organisation Profile MISSION: MIB Agents is a leading pediatric osteosarcoma nonprofit dedicated to Making It Better for our community of patients, caregivers, doctors, and researchers with the goal of less toxic, more effective treatments and a cure for this aggressive bone cancer. VISION: A…

Contact Information EHE Rare Cancer Charity (UK) 23 Geneva Road Kingston-Upon-Thames Surrey KT1 2TW email: contactus@ehercc.co.ukWeb: www.ehercc.org.uk Contact Person Hugh Leonard, Chair of Trusteesemail: hleonard@ehercc.co.uk   Organisation Epithelioid Haemangioendothelioma (EHE) is an indiscriminate and often destructive cancer occurring in men or woman at any age and which is often aggressive in children and young adults. We…

Contact Information Chondrosarcoma Foundation Phone: 301-352-3042Email: info@csfshayna.org Contact Person Jeff Kramer, PresidentEmail: kcam@his.com Organisation Profile The purpose of CS Foundation is to educate the public about Chondrosarcoma; support and advocate for patients and families that are suffering from this disease, and advocate to improve the treatment and care for these patients. CS Foundation also strives…

Contact Information LeiomyoSarcoma Support & Direct Research FoundationPost Office Box 52697Tulsa, Oklahoma 74152Phone: 1-866-912-2730Email: 2lmsdr@gmail.comwww.LMSDR.org Facebook support group: https://www.facebook.com/groups/lmsdr/   Organisation Profile  

Contact Information Recovering Together Association/Gyógyulj Velünk Egyesület (RTA/GYVE)Szent Laszlo Korhaz (Hospital), Tuzmadar Haz1097, BudapestHungary+36309227797Email: info@gyve.huWeb: www.gyve.hu Facebook: https://www.facebook.com/egyesulet.gyogyuljvelunk Youtube: https://www.youtube.com/channel/UC-N4WM4D81cn3NwuuCyK0JA   Contact Person Zoltan Kalo (Patient & Board Member/ International relations)E-Mail: zoltankalo@yahoo.com+36706627092   Organisation Profile The Recovering Together Association was created to raise awareness of cancer and to support those affected in all life situations.…

Contact Information Campaigning for CancerWebsite: www.campaign4cancer.co.zaEmail: info@campaign4cancer.co.za Postal Address44 Forbes StreetFellside2192JohannesburgSouth Africa Contact PersonMicaela DanielsEmail: Micaela@campaign4cancer.co.za   Organisation Profile Pioneering cancer advocacy in South Africa, Campaigning for Cancer lobbies for the promotion and protection of the rights of patients and those affected by cancer with regard to policy, healthcare costs and healthcare delivery. Campaigning for…

Contact Information Chordoma Foundation PO Box 2127 Durham, NC 27702-2127USAPhone: +1 919-809-6779Email: info@chordoma.orgWeb: http://www.chordoma.org/   Contact Person Shannon LozinskyDirector Patient Services E-Mail: shannon@chordoma.org Organisation Profile Chordoma is a rare cancer that grows in the bones of the skull and spine. It can affect people of all ages and is diagnosed in just one in one million…

Contact Information Orchestra per la Vita Onlus Email: info@orchestraperlavita.orgWeb: www.orchestraperlavita.org Contact Person Leda Berto (President) Mail: info@orchestraperlavita.org Andrea Bolzicco Mail: andrea.bolzicco@orchestraperlavita.org   Organisation Profile Orchestra per la Vita Onlus has supported the Epithelioid Sarcoma research at the National Cancer Research center (IRCCS Istituto Nazionale dei Tumori ) in Milan during the last 5 years with…

Contact Information Das Lebenshaus e.V.Swiss GIST Group/GIST Gruppe Schweiz Sterenweg 7, CH-6300 ZugTel. +41 (0)41 710 80 58Fax +41 (0)41 710 80 78Mail: gist@gist.chWeb: http://www.gist.ch/ Contact Person Martin Wettstein (President)Email: martin.wettstein@gist.ch Helga Meier Schnorf Email: gist@gist.ch    Organisation Profile On January 14, 2010 the GIST-Group of Switzerland was founded in accordance with the provisions of…