Posts by cowic
Update on the management of sporadic desmoid-type fibromatosis
Desmoid-type fibromatosis (DF) is a rare and locally aggressive monoclonal, fibroblastic proliferation characterized by a variable and often unpredictable clinical course. Currently, there is no established or evidence-based treatment approach available for this disease. Therefore, in 2015 the European Desmoid Working Group published a position paper giving recommendations on the treatment of Desmoids. Here, we…
Read MoreLearn More About Patient Power In India
New Trial CABOGIST now open
Cabozantinib in patients with metastatic gastrointestinal stromal tumor (GIST) who progressed during neoadjuvant, adjuvant or palliative therapy with imatinib and sunitinib. Trial name: CABO-GIST (see more information on our study registry) Agents: Cabozantinib Phase: II Status: Open, recruiting Sponsor: European Organisation for Research and Treatment of Cancer – EORTC Further information https://clinicaltrials.gov/ct/show/NCT02216578 or http://www.eortc.org/clinical-trials/
Read MoreResults of 62005 study available now
The 62005 study looked at the ten-year progression-free and overall survival in patients with unresectable or metastatic gastrointestinal stromal tumours (GIST). Long-term analysis of the EORTC, ISG, AGITG intergroup Phase III randomized trial on imatinib at two dose levels. Results Study 62005
Read More7th SPAEN Conference 2016 Warsaw/Poland
ERNs start work March 1, 2017
Newly established European Reference Networks (ERNs) start their work March 1, 2017 24 thematic ERNs, gathering over 900 highly specialised healthcare units from 26 countries, will begin working together on a wide range of issues. Among them the ERN for Rare Solid Tumours EURACAN. SPAEN, along with other patient advocacy groups for rare…
Read MoreInterest Group Developed Sarcoma Policy Checklist
On 8th of February 2017 a rare cancer policy debate at the European Parliament took place on how to improve the policy response to rare cancers, with a focus on sarcoma. Representatives from the ​European ​Commission, ​Member States, the ​European ​Parliament, ​industry ​delegates and ​sarcoma ​patients engaged in a policy debate on key challendes for…
Read MoreNew Desmoid Trial started in Belgium
eSurge 2016 Summary
On the 15th and 16th of November 2016, 50 surgeons from 13 different countries met in Institut Curie, Paris to attend the fifth edition of the esurge sarcoma surgery masterclass developed and directed by Dr Sylvie Bonvalot (Institut Curie) and Dr Alessandro Gronchi (Istituto di Tumori di Milano). Launched in 2010 as part of the…
Read MoreEuro Ewing 2012
Trial for the Treatment of Newly Diagnosed Ewing’s Sarcoma Family of Tumours Agents: Different chemotherapy regimens Phase III Status Open, recruiting Sponsor University of Birmingham Further information: https://www.ucl.ac.uk/cancer/research/centres-and-networks/euro-ewing-consortium/clinical-trials/euro-ewing-2012/ee2012 WHO is the trial for? Patients with diagnosed Ewing’s sarcoma, primitive neuroectodermal tumour, soft tissue Ewing’s tumour Overall health status of the patient has…
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