Posts by cowic

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Sarcomas are a diverse and relatively rare group of malignant tumors, originating in supportive and connective tissues such as bones, tendons, cartilage, muscle, and fat – the so called “mesenchymal cells”. They only account for slightly more than 1% of all cancer diagnoses in adults and for nearly 21% of all solid malignant cancers in…

Infographics translate information into easy-to-understand visuals. Please feel free to use these infographics for your communication. What are sarcomas? Key facts about sarcomas (please download your preferred language: Englisch, French, German)                 Merken Merken Merken

The network only is as strong as its members. SPAEN welcomes every sarcoma, GIST or desmoid patient group and individuals interested in sarcomas worldwide to become part of our network and thus strengthen it.   Why join SPAEN? Enjoy information exchange with other members, receive SPAEN newsletters and briefings, an invitation to SPAEN’s annual meeting,…

The Leiomyosarcoma Research Roundtable On September 14, 2019, 35 sarcoma experts and researchers assembled at the Sylvester Cancer Center in Miami, Florida, to discuss the current status of treatment and care in leiomyosarcomas (LMS) as well as brainstorm about possible ways to approach LMS in the future. The roundtable was initiated by the US patient…

    As leiomyosarcoma patients are challenged by the development of metastatic disease, effective systemic therapies are the cornerstone of outcome. However, the overall activity of the currently available conventional systemic treatments and the prognosis of patients with advanced or metastatic disease are still poor, making the treatment of this patient group challenging. Therefore, in…

  WECAN has launched the “Virtual Meeting Resource Center“, which provides a set of guides, instructions, check lists and templates which should help patient advocates to run successful virtual meetings, general assemblies, webinars, online brainstorming meetings – as the situation on face-to-face meetings is not likely to change in the near future. WECAN has compiled…