Posts by cowic

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Sarcomas are a diverse and relatively rare group of malignant tumors, originating in supportive and connective tissues such as bones, tendons, cartilage, muscle, and fat – the so called “mesenchymal cells”. They only account for slightly more than 1% of all cancer diagnoses in adults and for nearly 21% of all solid malignant cancers in…

Infographics translate information into easy-to-understand visuals. Please feel free to use these infographics for your communication. What are sarcomas? Key facts about sarcomas (please download your preferred language: Englisch, French, German)                 Merken Merken Merken

The network only is as strong as its members. SPAEN welcomes every sarcoma, GIST or desmoid patient group and individuals interested in sarcomas worldwide to become part of our network and thus strengthen it.   Why join SPAEN? Enjoy information exchange with other members, receive SPAEN newsletters and briefings, an invitation to SPAEN’s annual meeting,…

Cancer patients know and have experienced that it can be not only helpful, but truly empowering to be part of patient community such as SPAEN. We would like to spread this inspiring and motivating feeling among other patients out there, living with the diagnosis of sarcoma. SPAEN therefore plans to create and publish a book…

The EURO EWING Consortium (EEC) is a collaborative project involving 20 European partners and is funded through European Union’s Framework Programme 7 (FP7). It brings together the most active clinicians and scientists in Europe dedicated to improving survival from Ewing sarcoma. What is Ewing sarcoma? Ewing sarcomas are fatal, rare bone cancers particularly affecting young…

SPAEN Policy Paper on “Quality Care in Sarcomas” This paper has been prepared in response to the growing number of requests for sarcoma patient views on such matters as expert treatment centres,  reference centres, rare cancer protocols etc.  Our objective with this paper is to give a clear statement of what we expect sarcoma treatment…