Posts by cowic
Seguimiento de la enfermedad
Se aconseja una red médica cercana de seguimiento para lugares anatómicos críticos o crecimientos tumorales agresivos, así como en casos de crecimiento multifocalizado. Es fundamental que el marco de tiempo establecido para el seguimiento de la enfermedad mediante RMN o TAC, venga individualizado y estimado en el consenso del comité médico multidisciplinar de tumores.
Read MoreSĂntomas y signos de la enfermedad
Los pacientes que experimentan esta enfermedad suelen manifestar la aparición de un bulto, nuevo o en crecimiento, de cierta dureza. También zonas con inflamación. Y, para ambos casos mencionados, el dolor es un signo asociado a esta enfermedad . En ocasiones, los pa-cientes experimentan una sensación de hormigueo o entumecimiento que también se relacio-na con…
Read MoreStatistics – Traffic and Visitors
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Read MoreSPAEN Advocacy Campus
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Read MoreWebinars (2)
SPAEN is happy to announce that our first webinars are on the way for late summer 2018! The role of radiotherapy in sarcomas & recent developmentsRick Haas, MD, PhD, Radiation-oncologist, The Netherlands Cancer Institute, The NetherlandsSeptember 19, 2018, 6 pm CET Experiences with olaratumab in soft tissue sarcomaDr. Robin Jones, Medical Oncologist, Head of…
Read MoreOur Webinars at the SPAEN Advocacy Campus
There are a lot of open questions about sarcomas by patients and patient advocates or even healthcare professionals, but not everybody can attend a congress or a conference to seek answers. SPAEN therefore launched the series of webinars on the SPAEN Advocacy Campus: To tackle important issues and answer relevant questions, we invite renowned experts…
Read MoreFind out more about our national groups
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Read MoreFind International Sarcoma Studies In Our Registry
International Top 10 Recommendations For Newly Diagnosed GIST Patients
For national GIST Patient Support and Advocacy groups: Please translate this list into your national language and provide the document for GIST-Patients on your website. Thank you very much! International “Top-10-Recommendations” for newly diagnosed GIST-Patients. 1. Gastrointestinal stromal tumours (GISTs) belong to the group of sarcomas; they are uncommon tumours of the digestive (gastrointestinal; GI)…
Read MoreEarly Involvement: Clinical Studies From A Patient Perspective
Clinical studies are an essential step in the development of novel treatment methods for cancer and other diseases. They show researchers what works for the welfare of patients and what does not. In addition to safety and effectiveness they also determine whether the side effects of a new treatment are acceptable and, increasingly, what quality…
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