Blog & News
New ESMO Guidelines for GIST, Bone Sarcomas and Soft Tissue Sarcomas
The updated ESMO-EURACAN-GENTURIS (European Society for Medical Oncology; European Reference Network for Rare Adult Solid Cancers; European Reference Network for Genetic Tumour Risk Syndromes) Clinical Practice Guidelines for Gastrointestinal Stromal Tumours have been published in Annals of Oncology at September 2021,…
AIAA Winner 2020
SPAEN Advocacy in Action Award 2020 winners have been announced! Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. We believe it is time to shout out about how…
Funding/Finances
Sarcoma Patients EuroNet e.V./Assoc. (SPAEN) welcomes corporate donations, grants and sponsorship to fund certain projects and to enable the association to grow and develop. SPAEN invites companies and individuals to become corporate members or supporters with an annual unrestricted grant. Corporate members…
100 years Ewing Sarcoma Meeting 2021
Over 300 international participants attended the scientific meeting “100 years Ewing Sarcoma: Learnings from the past, Challenges for the future”. Over the course of the two-day conference, we took a look on what has been achieved in Ewing Sarcoma so far, what…
New Horizons GIST 2020 – GOES virtual
The corona virus has dramatically changed our private lives and our lives as Patient Advocates worldwide. So, also NEW HORIZONS GIST 2020 was held virtually! As many of you have already experienced: NEW HORIZONS GIST is a great opportunity where…
AIAA Winners 2019
SPAEN Advocacy in Action Award 2019: Winners announced For the third time SPAEN was calling again for submission of outstanding projects and initiatives for our SPAEN Advocacy in Action Award 2019. We received 12 submissions from 10 member organisations from 5 countries,…
Research Priorities in Bone Sarcomas
Bone sarcomas are a diverse and hard to treat group of rare cancers. People with bone sarcomas (or primary bone cancer) have high unmet medical needs, and face a range of challenges including delays to diagnosis, disparities in access to treatments and a…
SPAEN supports cancer/sarcoma patients from Ukraine with a donation of 10.000 Euro
Wölfersheim/Germany, March 15, 2022 The current situation in Ukraine is a humanitarian catastrophe and we strongly condemn this unjustified war of aggression against Ukraine by Russian’s president Wladimir Putin. As a global organization, Sarcoma Patients EuroNet Assoc. (SPAEN) stands in solidarity…
Quality of Life and the Patient Perspective in Research
{loadposition position-18} Why should the patient perspective be assessed in cancer and sarcoma treatment? And how can measuring patient-reported outcomes improve the situation for patients? What additional information can patient-reported outcomes provide in the setting of clinical trials? Dr. Olga Husson, epidemiologist…
The SPAEN Sarcoma Research Group
Research in sarcomas needs to become more patient-centric! {loadmoduleid 124} We feel that research decision making sometimes depend on other reasons than actual needs and most important questions for patients. Therefore, we would like to work towards developing a strategy and clear…