🌍Working Groups
t SPAGN, our Working Groups serve as collaborative platforms where patient advocates, organizations, healthcare professionals, and other partners come together to address shared priorities in the sarcoma community.
Guided by our mission—working together, making a difference—these groups focus on specific challenges across sarcoma types and regions. They foster dialogue, encourage knowledge exchange, and ensure that the patient voice is embedded in advocacy, research, and policy development.
Our active Working Groups are:
The SPAGN Community Advisory Working Group
An international group of patients, caregivers, and patient advocates established and operated by SPAGN. This group works closely with and provides insights and guidance to organizations, researchers, institutions or pharmaceutical companies.
Bone Sarcoma Alliance
Global collaboration bringing together bone sarcoma organizations and advocates to share expertise, strengthen connections & drive action.
Sarcomunicándonos América Latina
A regional initiative supporting sarcoma patients in Latin America through multilingual webinars and community building.