News
Key Findings from Phase II of the SPAGN Priority Setting Partnership published đź“ť
The Sarcoma Patient Advocacy Global Network (SPAGN) has published the results of the second phase of its Priority Setting Partnership (PSP), focusing on identifying research and patient advocacy priorities in sarcoma care, in "BMC Cancer". This initiative is groundbreaking as...
Save the Date: SPAGN Annual Conference 2025 in Washington D.C.!đź“…
We are thrilled to announce that the SPAGN Annual Conference 2025 will be held in Washington D.C., USA, from April 11-13, 2025. This will be our first conference in the United States, marking a significant milestone for our global community....
Sarcoma Awareness Month 2024 is approaching quickly: Join our campaign!
Sarcoma Awareness Month is held annually in July, a time when the global sarcoma community comes together with a unified mission: to raise awareness about this rare and often overlooked group of cancers and to highlight the unique challenges faced...
What is a sarcoma specialist center?
On May 13, 2024, SPAGN published a paper in "Cancers" on the definition, core principles and features of a sarcoma specialist center, developed by patient advocates and healthcare professionals together. The management of sarcomas in specialist centers delivers significant benefits....
Join the SPAGN Editorial Blog Team: Volunteer Job Opportunity
Volunteer Opportunity: Editors for SPAGN Blog - Voices of Sarcoma Are you passionate about storytelling and making an impact in the sarcoma community? Join SPAGN's Editorial Team and help shape our global blog, Voices of Sarcoma-and have fun doing it!...
First Webinar “What is a Sarcoma?” in Spanish and Portuguese, March 22, 2024!
Nos complace anunciar nuestro primer webinar para pacientes con sarcoma, cuidadores y defensores de pacientes de América Central y del Sur, realizado en español y portugués por especialistas en sarcoma de Argentina y Brasil en esta ocasión. El webinar tendrá...
EU-X-CT – Patient Questionnaire – Borders should not be barriers to clinical trials
The EU-X-CT initiative aims at revolutionizing patient access to clinical trials across borders. But before we delve into the project details, we want to emphasize something crucial - your participation! The data is being collected through a Patient Questionnaire which...
Insights from the EMA and EORTC Workshop on Developing Treatments for Ultra-Rare Sarcomas
Author: Gerry Feeney How can we develop new treatments in ultra-rare sarcomas, as a model for ultra-rare tumors? On January 12, 2024, a workshop between regulators, researchers and patient advocates was held at the European Medicines Agency (EMA) premises...
SPAGN Annual Conference Registrations Are Now Open – Secure Your Spot Today!
Registration for SPAGN Annual Conference 2024 Is Now Open We are thrilled to announce that registration is now open for the SPAGN Annual Conference 2024, a radiant exchange of knowledge and inspiration for the global sarcoma community! Join us for...
FDA Approves Groundbreaking Treatment for Rare Desmoid Tumors: Ogsiveo Offers New Hope
Today, the U.S. Food and Drug Administration (FDA) has approved Ogsiveo (nirogacestat) tablets as the first therapy designed for adults with progressing desmoid tumors, a rare subtype of soft tissue sarcomas. Desmoid tumors, though non-cancerous, are locally aggressive, causing...
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