SPAGN member groups
Please find our member organisations listed below. It gives you a sense of SPAGN’s extensive reach and the notable work our members do. This can be in the most challenging of environments, for example where healthcare, medicines and equipment for sarcoma treatments and care do not exist, are in short supply or not accessible equitably. We know that by working together with other organisations and initiatives we can achieve more.
- Australia: Sock it to Sarcoma
- Austria: GIST Support Österreich
- Belgium: Cum Cura
- Bulgaria: GIST and STS Alliance for Patients – Bulgaria
- Bulgaria: TOGETHER FIGHTING SARCOMA
- Curacao: Synovial Sarcoma Research Foundation
- Finland: Finnish GIST Patient Network
- France: Info Sarcomes
- France: SOS Desmoide France
- Germany: Deutsche Sarkom-Stiftung/German Sarcoma Foundation
- Germany: SOS-Desmoid
- Germany: SMARCB1 e.V.
- Hungary: Recovering Together Association/Gyógyulj Velünk Egyesület
- India: Friends of Max GIST
- India: SPANDAN (part of V Care)
- India: DigiSwasthya Foundation
- Israel: Israeli GIST Patients Organisation
- Italy: A.I.G. Associazione Italiana GIST
- Italy: Italian Desmoid Foundation
- Italy: Trust Paola Gonzato-Rete Sarcoma Onlus
- Italy: Orchestra per la Vita Onlus
- Kenya: Henzo Kenya
- Macedonia: GIST Patient Group Macedonia
- Netherlands: Patient Platform Sarcomen
- Netherlands: Chordoma Foundation Europe
- Norway: Sarkomer Norway
- Poland: Stow. Pomocy Chorym Na GIST
- Poland: Stow. Pomocy Chorym Na Miesaki “SARCOMA”
- Romania: HomeCare Association
- South America: Alianza GIST
- South Africa: Campaigning for Cancer
- Spain: Sarcoma Patients Spanish Association/Asociación Española de Afectados por Sarcoma (AEAS)
- Spain: FUNDACIÓN MARI PAZ JIMENEZ CASADO
- Spain: ASARGA – Associacion Sarcomas of Galicia
- Sweden: GIST Sverige
- Sweden: Sarkomföreningen
- Switzerland: Swiss GIST Group
- Switzerland: Swiss Sarcoma
- Turkey: Genç Birikim Derneği & Youth Accumulation Association
- UK: Bone Cancer Research Trust
- UK: Desmoid Fibromatosis UK Patients & Caregivers
- UK: EHE Rare Cancer Charity
- UK: GIST Cancer UK and PAWS GIST
- UK: Guy Francis Bone Cancer Research Fund
- UK: Sarcoma UK
- UK: The Myrovlytis Trust
- USA: Chondrosarcoma Foundation
- USA: Chordoma Foundation
- USA: Desmoid Tumour Research Foundation
- USA: GSI – GIST Support International
- USA: LeiomyoSarcoma Support & Direct Research Foundation
- USA: Make IT Better Agents – pediatric osteosarcoma nonprofit
- USA: National Leiomyosarcoma Foundation
- USA: The Liddy Shriver Sarcoma Initiative
- USA: The Life Raft Group
- USA: Sarcoma Alliance
- USA: Sarcoma Coalition
- USA: Sarcoma Foundation of America