Mission & Vision / Strategy

SPAGN’s Mission

SPAGN is the global network of Sarcoma Patient Advocacy Organizations who support one other and provide a common, influential, international patient voice. Our joy and passion in working across borders drive us to achieve necessary change together with our collaborators.

In SPAGN’s work, there remains a clear focus on achieving change for those affected by sarcoma. This is done on the one hand by providing information and assistance for national groups, but also by representing patients' interests in international committees and interest groups.

 

SPAGN’s Vision

Our vision is that one day sarcomas will be preventable or curable. Until then, patients, experts and other stakeholders are working together globally to

• drive sarcoma research
• improve early and correct diagnosis
• secure timely access to interdisciplinary expert-care
• provide patient-oriented information and support

Our common aim is to ensure that more sarcoma patients will live longer with a better quality of life.

 

SPAGN’s Core Values

We define values as the principles that SPAGN stands for and that we consider important, worthwhile and morally good. Such values provide general orientation and guidance for situations, people and actions both internally and externally.

The defined (revised) values are:

• We are focused on the needs of our member organizations and sarcoma patients / carers
• We are motivated to advocate proactively based on evidence
• We strive for a high quality of information and education: up-to-date, correct, understandable, editorially independent
• Our working style is reliable, transparent, team- and result-oriented
• As a global organization, we do not intervene directly in individual countries, we behave in a culturally sensitive
  manner, free of political or religious differences