Share Your Experience: Contribute to the CURE ID Sarcoma

Patients, care partners, and healthcare providers are invited to share their experiences through the Sarcoma Treatment Survey on CURE ID.

CURE ID is a free website and mobile app developed by the U.S. Food and Drug Administration (FDA) and the National Institutes of Health (NIH) in collaboration with several patient and clinical organizations. The platform provides the opportunity to share novel uses of existing drugs—also known as drug repurposing or off-label use—and to explore what others have tried.

CURE ID’s mission is to use information shared by users about their treatment experiences to help inform which drugs are studied in clinical trials. Findings from these trials can help the medical community learn whether a drug is effective for a new use, with the goal of identifying potential treatments for challenging diseases that lack good treatment options.

Currently, the platform is being piloted for rare cancers, with a specific focus on sarcomas.

By sharing treatment experiences, patients, care partners, and healthcare providers may help inform future research and identify promising treatments, as well as treatments that are ineffective or harmful. These experiences may also inform the drugs studied in clinical trials.