AIAA Winners 2018

February 2, 2019

SPAEN Advocacy in Action Award 2018: Winners announced

Patient advocacy ensures that people are heard, take action and ultimately improve situations, achieve changes or help to fulfil unmet medical needs. The projects that were entered for the "Sarcoma Advocacy in Action Award 2018" once again showed this impressively! All entries were fantastic and the jury had a hard job to decide on the winners. But they did. These are the winners of the "Sarcoma Advocacy in Action Award 2018":

1. Das Lebenshaus, Germany for the "German Sarcoma Conference"
2. GIST Support UK/PAWS GIST, UK for the "PAWS-GIST clinic"
3. Patientenplatform Sarcomen, The Netherlands for the "Patient Forum Miner"

 

Thanks to all the groups that entered their fantastic work - you can find information about all projects that were entered here:

  • Polish GIST Patients Aid Association, Poland, for
    "The 4/2018 issue of the journal ‘Voice of the Oncological Patient’,devoted to patients suffering SARCOMA"
  • #cycle4sarcoma, Finland, for
    "#cycle4sarcoma, social media interface, cycling and fundraising for sarcoma"
  • The Bone Cancer Research Trust (BCRT) / The National Ewings Multi-Disciplinary Team Advisory Group (NEMDT), UK, for the
    "Patient Perspectives of the Cancer Multi-Disciplinary Team"
  • AEAS-Asociación Española de Afectados por Sarcomas, Spain, for the
    "International Sarcoma Day in Spain. Beyond sarcoma: people, words and projects with soul.”

Thanks also to our jury Barbara Tamagni, Sarah McDonald, Kai Pilgermann, Nikhil Guhagarkar as patient adovcates and Winette van der Graaf, Mikael Eriksson, Robin Jones and Bernd Kasper from the expert community.