AIAA Winners 2017

February 10, 2018

1st SPAEN Advocacy in Action Award for best projects in sarcoma patients advocacy was awarded

We are very happy to have received submissions of outstanding projects and initiatives for our SPAEN Advocacy in Action Award 2017.

The best projects have been awarded by a jury of 8 members consisting of patient advocates and experts. Those projects are:

  1. Friends of Max, India: Together We Share and Learn - Ongoing life-long relationship management of GIST patients & caregivers
  2. Polish Sarcoma Patients Association, Poland: ONCORUN - Together for health!
  3. Associazione Paola, Italy: 1. Paper on sarcoma/rare cancer health policies, 2. Sarcoma meeting for healthcare professionals and policy makers, 3. Funding Ewing sarcoma research (travel scholarship 2017/2018), 4. Lobbying in order to relax the rules for the “compassionate use” in rare cancers