Newsletter

Latest SPAGN Newsletters: 1 December 2022   Don’t miss latest news from Sarcoma Patient Advocacy Global Network! Subscribe here to our SPAGN newsletter: First Name* Last Name* Email* Private Policy* Yes, I have read the privacy policy:   Privacy Policy Subscribe www.CleverReach.de

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Privacy Policy

We are pleased to welcome you to our website www.sarcoma-patients.org In the context of our privacy policy, we would like to provide you with an overview of the technical data which are collected and which, in a broader sense, may have personal relevance and the direct personal data that we receive from you and how…

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Sarcoma Research Priorities

The Sarcoma Research Priorities Paper We want to know what needs to be improved about the diagnosis, treatment and care of people living with or beyond sarcomas (all subtypes) – and we need your help to do this (please see our survey below)! We want to define the top 10-20 most important questions for sarcoma…

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Imprint

Sarcoma Patient Global Advocacy Network e.V./Assoc. Official registered address: Sarcoma Patients EuroNet e.V./Assoc. Mr. Markus Wartenberg Untergasse 36 D-61200 Wölfersheim / Germany E-Mail: info@sarcoma-patients.org SPAGN is registered as an association under German law (eingetragener Verein e.V.) in Friedberg/Germany – Registration-Nr. VR 2609 Tax-ID-Number: DE268771102 Photos on this website by Uli Deck/ARTIS, freepik.com, Unsplash.com

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Contact us

Address: Sarcoma Patients EuroNet e.V./Assoc. Secretariat Michaela Geissler Am Rothenanger 1b D-85521 Riemerling / Germany E-Mail: info@sarcoma-patients.eu Official registered address: Sarcoma Patients EuroNet e.V./Assoc. Mr. Markus Wartenberg Untergasse 36 D-61200 Wölfersheim / Germany SPAEN is registered as an association under German law (eingetragener Verein e.V.) in Friedberg/Germany – Registration-Nr. VR 2609 Tax-ID-Number: DE268771102 Please note:…

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About us

{loadposition position-15}   Sarcoma Patients EuroNet Association (SPAEN), the international Network of Sarcoma, GIST and Desmoid Patient Advocacy Groups, was founded in April 2009 with the aim of extending information services, patient support and advocacy to patient organisations for the benefit of sarcoma patients across the whole of Europe and internationally. Acting in partnership with…

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