Looking back on 2022 and ahead to 2023

How was 2022 for your organization? What accomplishments are you proud of?

We at SPAGN are looking back at what we have done in the past year to impact the treatment and survival of sarcoma patients. We also want to look ahead to our plans for the near future.

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How to Create High-quality Information Materials for Patients, Part 1: Checklist of Key Steps

As any advocate knows, an important task of a patient organization is to produce information materials for patients and their caregivers. This task is not as easy as it looks — after all, most of us advocates have not been trained in journalism or graphic arts or medicine.

We may wonder: What makes a brochure or a website text for patients successful? How can our patient advocacy organization ensure the quality of the patient resources we produce?

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Advocacy 2.0: The Evolving Role of Advocates in Rare Cancers

What do you say when someone asks you what a patient advocate does?

If you asked me, I would answer from my own experience: Advocates work with patients and their families. We support people and we share information with them.

However, as important as these activities may be, there is so much more that we advocates can do.

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