UK: Chordoma UK

Contact Information


c/o UCL Cancer Institute Research Trust
72 Huntley Street, London, WC1E 6BT
Tel ++44 (0)20 7679 6325

Chordoma UK is administered as part of the UCL Cancer Institute Research Trust,

a registered charity (RCN 1135220)


Contact Person

Gerald Fitz-Gibbon (Founder),

Susan Fitz-Gibbon (Founder and diagnosed with Chordoma 2007),

Richard Sutton-Mattocks (Chairman UCL CIRT)

Organisation Profile

Chordoma is a rare and relentless bone cancer that can occur in people of all ages. The aim of Chordoma UK is to financially support and ensure the future of high-impact research initiatives being carried out by a team of scientists, led by Professor Adrienne Flanagan, Head of The Research Department of Pathology at the UCL Cancer Institute, part of University College London, one of the worlds’s leading universities.

The dedicated research team’s primary focus is to undertake ground breaking research over the next 3 years to screen 1000 drugs and compounds against chordoma tumours. This is in order to discover how this cancer can be treated, and develop effective treatments to improve the lives of chordoma patients.


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