28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities.
The theme for Rare Disease Day 2019 is ‘Bridging health and social care‘.
A rare disease, also referred to as an orphan disease, is any disorder that affects a small percentage of the population. Although the disease may be rare, patients and families share a common struggle.
Rare Disease Day is open to everyone!
Individuals, patients, patient organisations, health professionals, researchers, drug developers, public health authorities—the more people involved the better! If you want to get involved, have a look – there are many ways to participate. Let’s join our efforts to give hope to rare disease patients all over the world!