Harvesting Patient-generated information from internet discussion forums

CTOS, November 2017

During the CTOS (Connective Tissue Oncology Society) 2017 conference in Maui, Hawaii, SPAEN Board member and Chairman of the Dutch sarcoma patient platform Gerard van Oortmerssen gave a presentation on a project aiming at harvesting information from patient discussions on the Internet. Cancer patients, in particular patients with rare cancers, are increasingly active on internet discussion fora in order to get into touch with patients with the same diagnosis.

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